I’m new to the board, but have been dealing with this since 10/2009. It hit me hard, and when I went into my FP, she told me I was getting over mono and it would get better. Two weeks later I was in the Emergency Room, in so much pain I couldn’t walk. The ER doctor after running test said that he was sure I had some type of autoimmune disease and referred me to his rheumatologist. After tons of blood work I was started on Predisone & Plaquinel, that lasted for 6 months with no relief. Then moved onto methotrexate & predisone, that lasted for 3-4 months with no relief. Then moved to Cellcept and Predisone...things got a lot better. I was able to go from 30mg of predisone down to 0. Felt pretty good, even started at the gym again and lost a few pounds, was sleeping at night, I felt great not taking predisone, I felt like me again!!.
Then I had a huge flare up and was not able to get out of bed, back on Predisone. Fast forward to today.. No relief, on a high dose of Cellcept & Predisone again. I’ve now been diagnosed with systemic lupus. I’m schedule for Rutuxin Infusion on 8/10. I’m hoping this will help and get me off Predisone (granny crack!). I would love to know if you have had Rutuxin Infusion treatments and your experience with it…
This has been the longest year and a half… I’m only 43, I was a very active, fit, mother, and wife. Now I can barely walk, I wake up, go to work, try to spend some time with my family without snapping at them, before crawling into bed. I've read some of the threads on this board and my heart aches at the amount of pain and the length of time some of you have been dealing with this.
Post Edited (DL123) : 7/28/2011 12:17:37 PM (GMT-6)