saw the rheumy...still no answers

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angiek
New Member


Date Joined Jul 2011
Total Posts : 17
   Posted 7/27/2011 10:10 PM (GMT -6)   
Hey all,
 
I saw a rheumatologist on monday after my neurologist referred me for a high ana 1:2560 speckled and homogenous. I saw the neuro because I was having weakness in my arms and legs, tingling and pins and needles sensations. Some numbness in my extremites, extreme fatigue. My MRI came back clean for MS lesions. I of course started looking around online what high ana meant and that lead me to lupus. The rheumatologist didn't really do much except take some blood and urine. He did a brief physical exam and asked a few questions.
 
I do have a light rash over my cheeks and nose, I also have been getting off and on a patchy red rash under my right eye and some mouth sores. I never really noticed if the face rashes get worse with sun exposure. The rheumy told me that none of those are like an AI rash because AI rashes don't come and go and progessivly get worse. I also have had very dry eyes lately and alot of nausea and stomach pain.Whenever I've been sick the last six months no matter what it is I get extreme joint pain for a fews days and then it goes away. He said it was obvious that I'm not very sick but my ana was pretty high and I probably do have something AI going on. He said to expect my test results no later than Monday August 1st. I know I should just be patient but does anyone have any thoughts??
 
The neuro put me on adderall low dose to help with the fatigue at least and that has been working. I feel like I can actually function again. The neuro also wants to continue seeing me if the rheumy can't connect the neurological symptoms to whatever AI thing I have going on.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/28/2011 7:05 AM (GMT -6)   
It sounds like it sounds like your rheumatologist doesn't want to commit to anything until he sees the test results.
He is wrong about the rash. My rash will come at a moments notice and fade away just as quickly. Sometimes it comes on as a light pink on my cheeks and sometimes it's large red dots.
Joy

angiek
New Member


Date Joined Jul 2011
Total Posts : 17
   Posted 7/28/2011 7:14 AM (GMT -6)   
It bugged me when he said that about the rash because its not what I've read about the lupus rash and I've seen photos of people who have diagnosed with lupus whose rash looks like mine.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/28/2011 7:23 AM (GMT -6)   
If he's still acting like that when you get your test results back I take all the papers of blood results and go find me another doctor. Sometimes doctors are wrong.
Joy

angiek
New Member


Date Joined Jul 2011
Total Posts : 17
   Posted 7/28/2011 7:44 AM (GMT -6)   
Yeah I was thinking that in the back of my head. His office is alittle far away too so it might be easier to find a doctor alittle closer.

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 7/28/2011 11:57 AM (GMT -6)   
And take a picture in good light of your rash, too.
hugs,
suetoo
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.
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