plaquenil - lenght of use

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New Member

Date Joined Apr 2009
Total Posts : 14
   Posted 7/28/2011 3:22 AM (GMT -6)   
Hi all - I would like to hear from people who have used plaquenil - Hydroxychloroquine for  a long period of time. I have been on plaquenil for 10 years now for Lupus and my Rhmy is not worried but my opthamologists is - I am kinda stuck  so any expereiences, sugestions or ideas would help me make a decision to carry on with meds or change.
Thanks you to guys out there you provide me with so much support I supose you have no idea how helpful this site is for me. Its like a friend.
Luv Honey

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 7/28/2011 7:01 AM (GMT -6)   
Are you experiencing any eye problems? If you're having vision problems and your ophthalmologist is concerned they need to talk to your rheumatologist about what is happening.

Veteran Member

Date Joined Nov 2006
Total Posts : 1331
   Posted 7/28/2011 6:19 PM (GMT -6)   
I was on plaq for a year..not a terribly long time, but I did have vision issues which were discovered during the testing that is done for those who are plaq..My right eye was affected and I had to discontinue use. It is really critical to get that baseline exam before even starting so that it can be determend if the issues that arise are really caused by the plaq OR something else! I really miss taking it and have not found any other medication that works as well.

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 7/29/2011 1:05 AM (GMT -6)   
I have been on plaquenil for almost 10 years. I have an annual eye exam with field vision check. So far, no problems but it is something I am always aware could change. If you are experiencing any kind of eye problems then it would be a very wise idea to let your rheumy know so that other possible medications might be discussed. Good luck!
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Bactrim, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.

New Member

Date Joined Apr 2009
Total Posts : 14
   Posted 7/29/2011 3:40 AM (GMT -6)   
Thanks for replies. I visited my GP today and we discussed decreasing the dosage, I am happy with this. I am required to have eye checks every 6 months so will keep those up too.
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