New..confused, concerned and scared.

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salamander
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/28/2011 11:36 PM (GMT -6)   
Easter weekend of this year I started to develop little blisters on my chest. They would go away during the week but weekends they came back. I was thinking it was caused by the turf soccer fields where my daughters games had been (always been real grass in the past) so I ignored it for awhile. After a month or so I got annoyed and went to my Dr. He thought it was impetigo ( niece had a case from school) and prescribed topical antibiotics. Of course this didn't help but I continued to used out of fear of infection ( i have had MRSA twice so scared of infections). about 2 mo ago after a very sunny weekend I ended up in urgent care with blisters all over my arms,neck, upper back and chest. Basically anywhere exposed to the sun was covered in blisters. Urgent care sent me home with steroid cream and orders to stay out of the sun. I love the sun so staying out of the sun is not going to happen especially when we get so little in the NW.
Anyway that hasn't helped at all. Went back to my DR who was baffled and sent me to a dermatologist. That was last Wednesday and she feels I have lupus. I was given antibiotics and prednisone for 10 days and go back on Wednesday for biopsy and blood work.
I guess my questions are what should I expect? What can I do? I guess this is completely unexpected. I am 32 in ok health other than sleep apnea and tendenitis. I do have ankle and foot pain frequently but I attributed that to having a crazy busy job; derm said lupus?
Any thoughts..advise? What I should be thinking about or doing? Or not doing?

Thanks!
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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/29/2011 8:20 AM (GMT -6)   
First, get you some sun protection.
Sunscreen (broad spectrum)
long sleeve shirts with sunscreen protection (Coolibar.com, sungrubbies.com)
Sunbrella (same sites)
Large wide brim hat
Solar protection sunglasses

The tendonitis is possibly from the lupus. I find mine is worse when the sun shines on it. Go figure.

Next, you'll have several blood tests done to be sure of what's going on. If it is Lupus you'll be put on a DMARD and pain medicine. A DMARD is Disease modifying anti-rhumatic drug. I'm on plaquenil.

Lupus is not the end of the world it's an adjustment in perspective, so hang on for the ride.
Joy

plain vanilla
New Member


Date Joined Jul 2011
Total Posts : 7
   Posted 7/30/2011 12:28 AM (GMT -6)   
I am also being tested for an autoimmune disease. I have had a rash on my neck that comes and goes (for over a year) and 3 months ago it started spreading all down my back, on my stomach and hip. The dermatologist took a biopsy and it came back as chronic hives. Since I have osteoarthritis, carpal tunnel, pain in all joints and lost my sense of smell, it could be Lupus. The last time I had too much sun exposure, the fluid in my joints got low and the pain was terrible. Still waiting on the results of bloodwork and urinalysis. I also live in the NW, and am happy to see sunny days. However, I agree with couchtater. Take care of your skin, keep the sun off it as much as you can. I didn't worry until I started developing basal cell carcinoma, and the last surgery was right under my eye continuing onto my cheek. I was lucky this time. The scar does not show because she cut it out in a way that blends with the natural lines in my face. I'm not pressing my luck anymore! Good luck with your diagnosis! Hope all goes well.

salamander
New Member


Date Joined Jul 2011
Total Posts : 2
   Posted 7/30/2011 2:02 AM (GMT -6)   
Thank you both for the advice. It is very much appreciated.
As time goes on I keep seeing more and more signs. Dr thought I had thyroid issues, and that test came up negative. Also thought I had diabetes, negative. My legs hurt like hell at night especially. Tonight for instance I took my daughter to a movie and my legs jumped and ached the entire time. Basically as soon as I stop moving for the day they go crazy, but once I lay down I am OK. I get sick easily. I have had numerous serious infections dating back to my teens (hospitalization and all). I had a very rough pregnancy (joints hurting, vomiting the entire 9 mo to the point I lost 50 ish lbs pregnant, also 2 miscarriages). I may be reading into everything too much. I never really thought about everything being linked...who knows right? It would surely explain a lot of strange things over the years...things that just never made sense but were never extremely "bad" to really look into further.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 7/30/2011 4:15 PM (GMT -6)   
I've looked back and could see all my troubles adding up over the last few years, too.

Like the old saying, "hindsight is better than foresight".
Joy

plain vanilla
New Member


Date Joined Jul 2011
Total Posts : 7
   Posted 8/3/2011 12:00 AM (GMT -6)   
Saw the derm for my lab work, and the tests she ordered came back in the normal range. The dx is Chronic Idiopathic Hives. I don't think I will pursue it any further. It could be caused by any number of things, and 95% of people diagnosed don't find the cause. They just treat the symptoms. I have my annual physical on Thursday and I'll give the lab papers to my PCP. I'm pretty sure she will agree with the dermotologist. She recommends taking Zyrtec until they are all cleared up. If they come right back I'll see the dermotologist again.
Hope all is well with everyone!
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