I was actually falling 3 x week, worked with both my pcp and Gyn docs, and finally snarled at my family doc..... "YOU TELL ME!!!! AM I FALLING BECAUSE I AM DEPRESSED OR DEPRESSED BECAUSE I'M FALLING?????????????????...I AM NOT DEPRESSED! I'M SICK OF BEING SICK!!!" By then, (long standing antiphospholipid antibodies documented, and finally a positive ANA which is apparently the myth connected to 'old" drs. diagnosis of lupus.....I went back to a rheumatologist and he sent me to a neurologist, and here I be. I had to stop working last June, and still wish I could work but oh so grateful to God I don't have to. Just don't give up, and document everything, write a symptom list and timeline. Take digital pictures of everything.
Well, almost everything. And I found it truly helpful to read old forum threads, so I learned from other's experience what questions I should ask of my drs. Welcome to the world of lupus. It is considered one of the most difficult of illnesses to diagnose. And symptoms come, and go, so it is truly normal and oh so terribly maddening to have test after test result come back "normal or low positive" and I have wanted to stuff more than one lab report, (I collected them all), where the sun don't shine at more than one of my doctors.
hang in there and keep us posted,
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.