I'm glad to hear the Benlysta is working so well for you. I tried it and it wasn't doing a thing for me so I had to stop the infusions. Of course, I've got several other things going on with me besides my lupus.
I have had 3 chest ports and currently have a port in my right arm just above my elbow. I like you have bad veins, being on high dose steroids for almost 13 years really has taken a toll on them too. Now, with my LGL leukemia I need it for my blood transfusions and potential IV chemotherapy drugs.
I just wanted to tell you it's going to go just fine with your infusion with your port. How long ago was it placed? It may be a bit tender at first with the first few accesses but you'll develop scar tissue where they place the Huber needle. Eventually, you'll not feel a thing, make sure that ONLY nurses or staff that are certified access your port. It needs to be accessed under sterile conditions period.
If you have any questions at all, please ask away. My first port was place in August 2004. I've even gone thru 2 ports with my line infected and know the drill for trying to clear an infection from the line. Don't worry things will be just fine.
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.