Sorry to hear you are going through this. I had the same thing happen to me! I became sick-joint issues, face rash ect ect and I had blood work done I tested pos for all kinds of autoimmune issues plus positive ana.Well I went back for blood test and tested pos for lyme and very low vitamin D (level 7). I then went back and have a neg ana, no lymes and a vit D of 19.
I just saw a new PC doc today and I am very satisfied with the outcome. At first I was nervous as I have so many issues and I thought maybe the would not understand. To my surprise they were very well versed on Lupus and other autoimmune issues. I told her all my symptoms and my issues with vit-D and she stated that I am far too young to be having these problems. I am 25, just out of curiosity how hold are you?
Also she told me blood work is NOT relible when it comes to autoimmune illnesses such as Lupus, she says it changes at a drop of a hat. She said that the symptoms it what matters because obviously it is not normal to be having such extreme health problems.
The PC also told me that I could be having such issues with Vit-D because my stomach is inflamed and I am not able to asord it like a normal person, she says this is common in people with Lupus. Even when I was on over 15,000 units a week it only went up to a 30 when I stopped the large amounts it went down, now I have to take 50,000 units per week. She also says that inflamation is the reason why my lymph nodes are always swolllen and is the reason for my heart and joint pains.
Dont give up! I was about to and did for awhile but what my PC said to me makes sense - there is no reason to be feeling so sick for so long, its def a chronic issue.
Post Edited (LAWCHICK) : 8/24/2011 11:32:07 AM (GMT-6)