Still no diagnosis-so FRUSTRATED!

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SparkleCity
Regular Member


Date Joined Aug 2011
Total Posts : 24
   Posted 8/30/2011 4:22 PM (GMT -6)   
I met with my Dr. today, who has predicted, was hesitant to diagnose me with anything based on my 1:40 ANA "weak" positive. I had posted here before that my SED was 30 and CRP was 1.8 I believe so both raised, along with a slightly high BUN/Creatinine level. He is sending me to a very good rheumatologist though for the more detailed antibody tests.

Oh, he didn't think the "speckled" pattern meant much as an indicator....w/my symptoms and other bloodwork, I think it does.

After ten years of this...I am desperate for a diagnosis and a plan of action. My fatigue and aches/pains are worse and this year I have developed Raynaud's andangular chelitis on my mouth that won't go away. I have done so much research and these symptoms paired with my bloodwork point to autoimmune disorder to me. I guess he wants to check the ANA over time to see if it keeps creeping up. So in the meantime I guess I continue to struggle to get to work , waste my weekends napping, and teach my husband to cook so I can rest.

I am just so upset with all this. I haven't felt "good" a day in my life since I was 17. I feel like I'm doing all I can with research, bloodwork, and Dr visits but still nothing changes :(

Thanks for letting me vent. No one understands how frustrating this is in my "real life".

Julie

Post Edited (SparkleCity) : 8/30/2011 3:32:33 PM (GMT-6)


couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 8/30/2011 6:24 PM (GMT -6)   
At least you're getting to see a rhuemy. Hopefully he will be able to help you out more.
Joy

slee51
New Member


Date Joined Aug 2011
Total Posts : 3
   Posted 8/31/2011 9:13 PM (GMT -6)   
My prayers are with you...hopefully soon you'll be able to get a diagnosis and start treatment...sounds like the rhuemy is a step in the right direction! You're lucky to have such a supportive husband - mine won't step foot in the kitchen! :p

kumasteph
New Member


Date Joined Sep 2011
Total Posts : 3
   Posted 9/1/2011 12:52 PM (GMT -6)   
I can relate and I share your pain and frustration. Hope you get answers soon. Then I know there's hope for me.

LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 9/5/2011 9:27 PM (GMT -6)   
Don't give up! I know its frustrating especially when you have all the symptoms yet docs only want to go by the blood work. From what my PC and Rhuemmy tell me is that blood work is NOT reliable. My blood work is different everytime. Pos ANA, neg ANA, pos for this disease that disease, neg for this disease that disease, now I have lymes now I don't on and on and on. I've been dealing with this for 5 years I now feel like I am finally getting the help and answers I been waiting for its all about finding the right doc.

Just please remember there is NO reason why you should feel so sick. There IS something wrong. I am only 25 but have been exhausted for years with chest pains, joint pains, pains throughout body,lymph nodes so swollen even my dr's can't believe they are so big. I am finally starting plaquiline and I hope this will help. Just know that you need a doc who will listen to you and your symptoms not wait for your ANA to creep up that is ridiculous in my opinion.
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