Venus Williams announces AI Disease

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lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/1/2011 10:23 AM (GMT -6)   
I'm no Venus Williams...but I do play tennis, and I have SLE with overlapping Sjogren's.  I find that PLAYING tennis HELPS with the fatigue and joint pain. The days I don't play tennis I have more joint pain and fatigue than I do on the days I play tennis.  It's a push to get out there and play....but that's what those of us with Lupus DO!  We PUSH and save our spoons!

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 9/1/2011 2:10 PM (GMT -6)   
wow,it sounds to me as though you are almost mad at her for her decision to quit tennis?
The whole concept of exercise is a good one and we all should probably do more but her situation is different. Tennis is her career, she is on the court hours a day, sometimes many days at a time with out much resting time in between. That is a whole lot different story than the recreational exercise we get when we play, don't you think? And, she has also put a whole lot more stress on her joints being in that sport than the common person does. Sometimes those circuits are long and tedious and there is no rest, no pampering, no mental breaks. Most of us cannot hold a regular job let alone one so physical. I am sure she is doing whats best for her with her doctors and families blessings. And I am sure it wasnt an easy decision.

Thats my two cents.
Denita
**************************************
Rheumatoid arthritis with secondary Sjogrens, Fibromyalgia, meniscus tears in left knee, Cancer survivor

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/1/2011 3:16 PM (GMT -6)   
Dear Denita,
I agree with you! Are you surprised? I noticed that she was looking thinner and more tired when she last played tournament, and with all the pressure of being one of the world's greatest, if she "crashed" during a tournament (which happens to me often), it would be embarrassing and people would not understand. I am not angry with her...just angry with AI diseases!!!! It proves once again that no one...no matter how much fame and fortune...you are as vulnerable as we all are! Your post was well received!
Sarah

Earnest
New Member


Date Joined Aug 2011
Total Posts : 15
   Posted 9/1/2011 3:24 PM (GMT -6)   
I agree with you Denita. I have to stay away from the sun or it's instant flare up for me. Every individual is different.

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/1/2011 3:49 PM (GMT -6)   
Earnest,
I don't get the rash....my Lupus is systemic. However, if I am out in the sun for more than 45 minutes, I feel a "crash" coming on. Is this a "flare?" I always use SPF 30. I'm still learning about my disease.....

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 9/1/2011 5:55 PM (GMT -6)   
The sun aggravates the inflammation process of lupus. Actually, the heat alone, with no son, can aggravate mine pretty darn well!

The severity of a flare can vary person to person -- for a while 10 minutes in the sun would wipe me of energy for a couple of days. Since then my lupus has "quieted" and while I have no plans of long physical activity in the direct sun, I am able to go on a partially shaded canoe paddle for an hour or more.

It's one of those diseases where "your mileage may vary" -- and boy does it vary! From person to person, from day to day, from meal to meal...in more sensitive phases, someone (any random stranger!) looking at me funny would devastate me physically and mentally for a day or more. Other times, fairly close to standard reactions...it's always a "learning experience"!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Earnest
New Member


Date Joined Aug 2011
Total Posts : 15
   Posted 9/1/2011 7:16 PM (GMT -6)   
Sun exposure triggers fatigue and joint pain for me. When I do gardening I do it late in the afternoon or when it's cloudy. I don't like pain so I try to avoid triggers as best I can.

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/1/2011 7:44 PM (GMT -6)   
Does sun and heat affect systemic Lupus the same way it does discoid? I had a long discusion with my gyn today about my condition. She said that Lupus appearing after age 65 is normally not as severe as it is in younger people. The flares and crashesI have seem pretty severe to me. I told my gyn that I hoped to "pass" my PAP test, as I've been "failing" all my other lab tests!

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 9/1/2011 7:53 PM (GMT -6)   
Yes, I have systemic lupus, SLE, see my post above. No rashes or discoids involved,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/1/2011 8:04 PM (GMT -6)   
So...basically the symptoms, other than the butterly rash, are one of the same?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/2/2011 6:11 PM (GMT -6)   
I'm a teacher and I have to take my students out to the playground everyday for 20 minutes. I slather on broadspectrum sunscreen (70 spf), put on a shirt (spf 30), sun hat (spf 50), and sit under an umbrella (spf 100). After 20 minutes I have to get back inside or suffer for the rest of the day.
The school just installed UV filters on all my fluorescent lights in my classroom.

I've found that exposure to sunlight and fluorescent lights make me tired and itchy.
Joy

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/2/2011 6:22 PM (GMT -6)   
packed today for a long trip....kicked off a major flare....overwhelming fatigue, Raynauds, light flashes, bone pain. For me, sun exposure flares are minor compared to overdoing it with physical work. SLE takes on many faces, it seems.
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