For the past 6 years I have had the following symptoms (they have gotten much worse since the birth of my son almost 3 years ago): muscle weakness (every day), muscle and joint pain (every day), unusual fatigue (even after 10 hrs of sleep), tenderness to touch all over body (feels bruises), very tender and deep soreness on left side of back under rib cage, hair loss, occasional mouth sores, redness around nose that never goes away, occasional redness on cheeks, chin and eyelids, sensitivity to cold (not Raynauds), sensitivity to sun and tanning beds, frequent headaches, loss of appetite, trouble swallowing.
My dr referred me to a rheumatologist thinking it was lupus. The rheumt first told me it was fibromyalgia, then 7 of 8 lab results came back with positive ANA. was told twice by rheumy that it was lupus. Put me on Plaquenil. Within a week it was obvious that I was allergic to it. Called the rheumy to be told that Plaquenil is the only drug he prescribes for lupus. I told him that I was going to another rheumy for a second opinion. Trying to get the lab teats sent over to new dr, he is now telling them that I do NOT have lupus. My family doctor is not willing to refer me again. This process has me so depressed and I don't know where to go from hete. I am trying to raise 2 small kids and I am in constant pain. Does anyone have ANY suggestions for me? I am currently sitting in my family drs waiting area yet again to speak with the doctor about getting me in somewhere else but I am discouraged.