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lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/2/2011 7:05 PM (GMT -6)   
I've read about Raynaud's but not sure what it is.  Today, I had a numb feeling in my left hand and my fingertips on that hand looked strangely white compared to the rest of my hand and arm.  Does that sound like Raynaud's?  I'm so new at this and not sure what symptoms are related to my SLE...or something else. 

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/2/2011 7:55 PM (GMT -6)   
Raynaud's is generally related to lack of blood circulation in the fingers, and the turning white (or red) is usually when the hands/fingers get cold.

Numbness, on the other hand, is often related to nerve inflammation -- remember Lupus is basically a wild inflammation attacking random points, so an inflamed nerve is quite possible.

Have you started any inflammation-controlling medications?
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/3/2011 5:54 AM (GMT -6)   
Hi Lynnwood,
I take Aleve off and on.  I did try Mobic and it did nothing for me.  I try not to take too many as I find they are constipating and then I have more problems.  We keep our house at 78, so I wasnt cold...just had the numbness and tingling only in the left hand.  I turned 68 today....I made it past 67..that's when my Dad died.  He had Lupus which attackd hs kidneys.  I'm going to TRY and push ALL the symptoms out of my mind and celebrate my birthday today.  We leave for our long transatlantic cruise on Thursday.  I have my ski jacket, gloves, hat and scarf ready to take on Iceland and Greenland!  I havent been exposed to cold weather for over 14 years, living in south Florida.  This will be a REAL test! 

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 9/3/2011 8:27 AM (GMT -6)   
Hi! and Happy Travels,
Try and take a good picture next time it happens. In good light, and with both hands side by side for best comparison. Then email it to your dr. for your medical record.
hugs,
suetoo
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/3/2011 8:31 AM (GMT -6)   
Thank you, SueToo! Good idea! I am seeing my hematologist on Tuesday and hopefully will get clearance to go. I am also hoping for at least a 3 on my WBC. Haven't even been close the last few labs. BUT...he said as long as the neutrophils are not that much below normal I will be fine. Taking along a Zpak, anti bacterial spray and alcohol wipes for the airplane..and hope for the best! Stay well, Suetoo you too! :-)

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/3/2011 12:28 PM (GMT -6)   
Happy Birthday, LN!

You're 6 years younger than my mother who's a go-getter. She suffers from stage 3 kidney disease, diabetes, and MDS. You can't slow her down just like you. :)
We both suffer from Rayneuds. My hands turn cold and brick red with white spots. Her hands turn the traditional white fingers which are ice cold.


Have a great trip.
Joy

SparkleCity
Regular Member


Date Joined Aug 2011
Total Posts : 24
   Posted 9/3/2011 3:34 PM (GMT -6)   
My toes turn that strangely white color , or even scarier, they go deep purple. I showed it to my Dr. and he said it was Raynaud's. Haven't noticed it in my hands.

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/3/2011 4:56 PM (GMT -6)   
Thanks guys! Another problem today...wound up in the ER this afternoon (great way to spend a birthday!). Yesterday I saw some "light flashes" in my right eye. I thought nothing of it but it was annoying. Today I've been seeing a "spider hanging on a web." I looked up the symptoms on the internet and what I saw scared me. It said it could be a tear in the retina. The ER doctor put drops in the eye and looked in with a strong light. He said he didn't see tear, but he said LUPUS can do strange things to a body!! Has ANYONE had this happen????????

P. S. Joy:
Tell your Mom to KEEP ON TICKING! I play tennis with women older than her and they kick my butt!!!!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/3/2011 5:18 PM (GMT -6)   
I seem to get slight blurring in my left eye at time (dryness I assume). I even get small black specks that my eye doctor tells me is floaters. I also suffer from open angle glaucoma.
Joy

lupusnewbie
Regular Member


Date Joined Aug 2011
Total Posts : 52
   Posted 9/3/2011 5:26 PM (GMT -6)   
This was different...I have dry eyes too and use Genteel regularly. The light flashes were something I never experienced and this is not like little floaters..this is a huge spider that I am seeing!
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