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Regular Member

Date Joined Jul 2011
Total Posts : 43
   Posted 9/3/2011 3:45 AM (GMT -6)   
I need some ways to heal my body from all this pain and fatigue. I know a connective tissue disorder is not curable, but I need to know of things I can still do that would make me feel better. Everything has gotten to the point that it is way too overwelming. I'm ready to quit crying about it and fight back. First thing I am going to do is start exercising, because I have seriously failed in that department. If anyone has any extra advice, please share. I really could use some help right now. Thank you.

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 9/3/2011 7:20 AM (GMT -6)   
With exercise (and other activities as well) ... start with only about 1/2 of what you think you can do. See how the next couple of days are...then do a little more. Increases must be *very slow*. When I was still having a lot of symptoms I tried to get moving with a little exercise, and found it extremely easy to totally wear myself out and have to sleep 2-3 days. A very little at a time works well.

Some people have had to start with little trips -- like just walking to the mailbox once a day -- before adding just a little bit more. Maybe start with a minute or two of walking. After a week, add a minute or two. 'Tis better to increase very slowly than to set yourself back and loose all motivation.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Regular Member

Date Joined Jan 2006
Total Posts : 395
   Posted 9/3/2011 9:19 AM (GMT -6)   
Before I was diagnosed, I tried exercising. In part, to address my teenage daughter's conviction that if I just got off the couch and got some exercise, I'd feel way better. Didn't work. I've learned the hard way that I have to budget what little energy I get. On a rare day, when I actually felt better and rested, usually after an emergency course of prednisone, aka my miracle cure, I would try to do all the chores that I hadn't done in the past 6 months. I would accomplish until I almost passed out in the shower. And then end up immobile with joint pain and dizziness for a week. And funnily enough, the dust resettled, the floor crumbed up, and dust bunnies would attack my slippers again. So please take care to listen to your need for rest, and remember that even fun activities take energy.

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.
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