Hello and a couple of questions - why do I have two ANA results/patterns, and is the level relevant?

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YoungFossil
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Date Joined Sep 2011
Total Posts : 3
   Posted 9/6/2011 2:59 AM (GMT -6)   
Hi there, I have a feeling that you are the people to ask about this because my family doctor certainly wasn't helpful.
 
I have had a difficult few months after a lousy year, and a frankly challenging decade :-)
 
So, most recently, a emergency physician, I was in with a UTI, had me go for a battery of test. Stored iron (ferritin) was in my shoes, as was my Vit. D... more or less everything else was fine, except I came back with a positive ANA test, 160 speckled, and 160 homogeneous.... she said that it needed keeping an eye on, but at the time we were concentrating on some emotional fall-out from a family problem.
 
in teh last 4 months I've had 3 dramatic rashes that are very itchy, all over (well, areas, but all over), including a herald patch the first two times and itchy eyes etc etc. Also I have had a sore throat for years, but particularly at these times. Oh I dont' know I'm too tired to spell it all out, but suffice to say, enough joint, muscle pain, fatigue and other stuff for me to think this isn't all about havig two small children!
 
Anyway, I've felt so bad this week I went to a doctor at the regular practice,. and he was somewhat underwhelmed. He said come back if the ANA was in teh thousands, and I'm just a sensitive person. The itchy rash on my chest by teh end of the day, was nothing. The constant pain was nothing related. The red rash across my nose and cheeks just now as the summer is starting here (in Australia) was nothing. "for no obvious reason I'm just becoming more sensitive to the sun, and am tired because of my "issues". My isues are recovering from PostNatal Depression and a mother with a personality disorder.
I feel I've got both of these pretty much sorted (as much as I can!)....
 
So, sorry for the rambling, didn't know whether to give you everything or nothing, this is sort of inbetween.
 
1 - Why two patterns?
2 - Is 160 a relevant level?
3 - Am I just an allergic/sensitive person?
 
for background, I had ME (sometimes known as CFS, I'm not sure if the terms are interchangeable) for 7 years , some 25 years ago, and my dad got dermatomyositis when he was retired and had CA.
 
Thank you for any insight or support you can suggest.
 
 

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 9/6/2011 7:18 AM (GMT -6)   
Regular doctors usually know very little about auto-immune diseases. Please see a rheumotologist - they are the ones who know how to deal with the kinds of symptoms you are dealing with.

1) Two patterns of ANA -- I think your lab made an error, never heard of this and doesn't seem at all possible.
2) ANA is usually expressed as a titer, such as 1:160, 1:320, like that. I'm not convinced this is really an ANA result -- if so, it's a low positive. Some doctors insist on blood work, but Lupus is diagnosed more by symptoms than by labs. It's not an easily diagnosed illness.
3) No - the doctor just doesn't know better!

Hope that helps
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

YoungFossil
New Member


Date Joined Sep 2011
Total Posts : 3
   Posted 9/6/2011 7:34 AM (GMT -6)   
Sorry Lynnwood, I misread the layout of the results - it probably reads "1:160 speckled homogeneous pattern"... I've just googled, you can definitely have this description. Will have another look to see if it indicates anything specific....

thanks for your guidance, I do appreciate it.

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 9/6/2011 8:51 AM (GMT -6)   
Hi! and welcome,
I vote for a rheumy asap, too. I found it really helpful to read old topic threads from this forum, too. Hang tough, dealing with AI is tough on a good day. Don't give up. Get copies of all your lab tests, too. Building a notebook with labs and pictures of rashes and swollen legs, was the best thing I did when I first started getting sick.
hugs,
suetoo
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.

YoungFossil
New Member


Date Joined Sep 2011
Total Posts : 3
   Posted 9/6/2011 3:14 PM (GMT -6)   
Thanksk Suetoo - sorry if I'm replying very late - I'm in a completely different time zone here!

I've found a couple of useful looking rheumatologists nearby, and will go back to the helpful doctor for a referral on Friday. She's only there Tuesdays and Fridays.

Will feel really stupid if there's nothing there..but it doesn't feel like nothing. But you can start to feel like you're going a bit crazy. I remember this now from when the ME started.

Thanks again.
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