Sleep disorder

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SparkleCity
Regular Member


Date Joined Aug 2011
Total Posts : 24
   Posted 9/10/2011 3:50 PM (GMT -6)   
I wondered if anyone knows much about the connection between lupus and disordered sleep. Is there a connection? I believe I read there was. Any information you can share? Thank you.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/10/2011 4:36 PM (GMT -6)   
I know that hypothyroidism and sleep apnea go hand and hand. I got that from a thyroid book written by a doctor.
I have lupus, hypothyroidism and sleep apnea. So maybe there's a connection there...
Joy

Lharm
New Member


Date Joined Sep 2011
Total Posts : 1
   Posted 9/10/2011 5:17 PM (GMT -6)   
I have SLE for over a decade. I have also taken 5mg of Ambiem for most of that period. I have tried sleeping without the medication but find I become even more exhausted (I also have fibromyalgia) and my pain level increases. My point is....lupus messes with everything and for me...sleep, or lack thereof, was a major issue.

Best wishes..L

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2606
   Posted 9/11/2011 9:49 AM (GMT -6)   
I don't know about a connection between lupus and sleep disorder, but when I started taking prednisone, I virtually stopped sleeping. A good night's sleep is critical to good health, so if you haven't already, it's important to look into it.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin 1200mg, synthroid, spironolactone, actonel, niaspan, simcor, lunesta, cymbalta 90mg, norco 10, vitamin D, Calcium, Multi Vit. Fish Oil, low strength aspirin

BEW_thatwasfast
Regular Member


Date Joined Sep 2011
Total Posts : 51
   Posted 9/15/2011 1:42 PM (GMT -6)   
There must be some connection. The first question out of my rheumatologist and primary care doctors' mouth is always, "how's your sleep"?

Went to the ER today for breathing difficulties, and even the ER doc asked me how I was sleeping. I am newly diagnosed, so it still strikes me as funny when they ask that.
dx SLE 07/2011, OCD 2006, osteoarthritis 2002

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7698
   Posted 9/15/2011 1:54 PM (GMT -6)   
SLE made me totally exhausted, I could sleep 18 hours and still need a nap. One of the first things my rhuemy did was a sleep study (no issues) and then prescribed Trazodone for sleep. It seemed very very odd as I was already sleeping so much, but with Trazodone I sleep 8-9 hours and feel better than all those extra hours of "non-restorative" sleep previously.

Also the random inflammations from Lupus can result in fevers and night sweats -- that does a number on your sleep!

Thus, how much you sleep and how you feel when you wake up (still exhausted, or rejuvenated?) is important info for the Dr.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/15/2011 5:09 PM (GMT -6)   
I feel like I'm getting enough sleep, but to look at me you'd think I was awake all night. I've got horrible dark red/purple bags under my eyes. They're slightly sunken in, too.

I guess that's a normal look for someone with sleep apnea, hypothyroidism, allergies, and Lupus?
Joy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7698
   Posted 9/15/2011 8:57 PM (GMT -6)   
You may not be getting deep restorative sleep. It feels different!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/16/2011 5:03 PM (GMT -6)   
I guess I have another question for my rhuemy...
Joy

shoeless
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 9/17/2011 4:39 PM (GMT -6)   
can ya give her my list of questions too Joy?heeeeeeeee

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/17/2011 8:34 PM (GMT -6)   
I always forget what I want to tell him. My short term memory gives me fits at times. I have to make lists to remember things that are important. I've been meaning to call my pulmologist all week and keep forgetting to call her.
Joy

PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2606
   Posted 9/19/2011 10:12 AM (GMT -6)   
Joy, take notes when something happens or when a question comes up. Your phone may have a place to write down notes, and if so, you'll have it handy when you go to the rheumy. I'd be lost without my lists. Esp. my list of meds.
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

plaquenil, neurontin 1200mg, synthroid, spironolactone, actonel, niaspan, simcor, lunesta, cymbalta 90mg, norco 10, vitamin D, Calcium, Multi Vit. Fish Oil, low strength aspirin

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 9/19/2011 10:53 AM (GMT -6)   
Hi! Everyone,
Thank God for Ambien. I have taken it every night for almost 7 years, and I still sleep lousy, with periods of such exhaustion where I wake up almost as sick and tired as when I go to sleep. I get too tired to even cry. It is the only way I can fall asleep, and only sleep for a chunk of up to 5 hours if my joints, especially my left hip which has significant degenerative arthritis, aren't unusually painful. Then I wake up every hour and a half when I try and turn over in my sleep. I was dx. with asthma almost 10 yrs. before lupus, but I am never asthmatic unless I have a respiratory infection, and am often aware of horrible, just before trying to fall into an exhausted sleep, moments when I just know I am not taking a breath that I need to, that I have to consciously tell myself to breathe,  And this is always connected to my flares of nasty neuro symptoms. I am so relieved to know that I am not the only one with these types of symptoms. Some days I think I must be a hypochondriac and losing my mind.
suetoo
ps. sticky notes and lined grocery list notepads are blessings, too

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.
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