Thank God for Ambien. I have taken it every night for almost 7 years, and I still sleep lousy, with periods of such exhaustion where I wake up almost as sick and tired as when I go to sleep. I get too tired to even cry. It is the only way I can fall asleep, and only sleep for a chunk of up to 5 hours if my joints, especially my left hip which has significant degenerative arthritis, aren't unusually painful. Then I wake up every hour and a half when I try and turn over in my sleep. I was dx. with asthma almost 10 yrs. before lupus, but I am never asthmatic unless I have a respiratory infection, and am often aware of horrible, just before trying to fall into an exhausted sleep, moments when I just know I am not taking a breath that I need to, that I have to consciously tell myself to breathe, And this is always connected to my flares of nasty neuro symptoms. I am so relieved to know that I am not the only one with these types of symptoms. Some days I think I must be a hypochondriac and losing my mind.
ps. sticky notes and lined grocery list notepads are blessings, too
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U and Ambien every night. Advair, Albuterol and DuoNeb inhalers.