Your symptoms are all too familiar. I too began with the same. It can be very frustrating. But, the good news is there are some good days ahead. Once you see your rhemy make sure he or she doesn't shun you off. My rheumy wanted additional bloodwork. I was very blunt and informed the rheumy the following: "I have this constant pain, my scalp itch and burn, I lose more hair than I care to talk about
, my head hurt, my eyes are swollen and burn like hell, I have little white painless sores in my mouth, pain in every joint, muscle fatigue, swelling in my hands, joints and feet, my hands turn blue from time to time, rashes from time to time and I smile through the pain to prevent from crying, so Doc tell me -am I crazy, imagining the pain or is it really a Lupus flare? I refuse to do any further testing, I'm tested out!" Believe it or not it left the Dr. speechless. I said this to the Dr., because, like you, I have been going to Drs for years and every symptom is diagnosed as something else. Its been my experience that sometimes Doctors get stuck on stuuupid and relate all cases. It may seem that I'm angry. Not angry, just tired. I've spent hundreds of dollars on prescript
ions and doctor visit and needless to say the insurance has paid hundred's of thousands. Now, I don't have the best insurance and can't really afford Dr. visits because I can no longer work due to all the complications and pain on a daily basis. But anyway,
I wish you well, I hope you get the answers you need to get the treatment needed and try to get on with your life as painfree or painless as possible. Trust in me when I tell you I feel your pain!