Pain in Hands and Feet, Deformity in Fingers

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BEW_thatwasfast
Regular Member


Date Joined Sep 2011
Total Posts : 51
   Posted 9/15/2011 1:46 PM (GMT -6)   
Hello!
 
Newbie here.  :-)  I was diagnosed with SLE a couple of months ago and osteoarthritis 9 years ago.  I've had a bad pain in my hands and feet for over a year now, a throbbing pain so bad it wakes me up 5-10 times a night.  My fingers are starting to curve, away from the thumb side and toward the pinkie side.  I have a hard time opening jars and bottles, also skinny pens are hard to hold.  My job is computer-based, so my hands are my living!
 
I take 400 mg of Plaquenil daily, as well as Celebrex and 20mg Prednisone.
 
  • Do any of you struggle with hand and foot pain? 
  • Most of us have learned to live with low to mid levels of constant joint pain; how do you handle a sudden increase in your pain levels?  It's taken me almost a year, and I still haven't totally gotten used to this new level of hurting.  I'm interested in suggestions on how to distract yourself, also any home remedies or such that work for you.
  • I'm curious how you handle discussing your pain levels with your family.  Is it better to gloss things over or to tell the absolute truth?  When I try to talk with my mother about my joint pain, it upsets her and then I feel guilty for not just 'soldiering on'.  My mother is in her seventies and I hate to do anything to distress her.
  • Final thing.  Working up my nerve to ask my rheumatologist if these deformities are permanent (appointment is in 2 weeks).  Do you have any experience you could share with me?

Thank you in advance!  I don't know anyone else with SLE, so I'd appreciate your thoughts.


dx SLE 07/2011, OCD 2006, osteoarthritis 2002

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7723
   Posted 9/15/2011 3:01 PM (GMT -6)   
I do have hand and foot pain. For a while it felt like someone had poured burning acid into my finger & toe joints.

For me, taking plaquenil and prednisone helped tame the inflammation that was causing the pain...also Cellcept helped me. (Imuran and MTX are also tried, it's very random which of these 3 will work for a person, Imuran did nothing for me.)

Generally I don't say much about pain to anyone -- maybe "I've had to take some pain meds today so would rather not drive", but that's about it! I generally try not to talk about pain to older people who are likely to be in constant pain - it just seems to upset everyone and don't really help anything anyway!

I haven't had any deformities related to Lupus -- I wonder if that is more because of your osteoarthritis? Definitely ask your Dr all your questions!!

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/15/2011 6:04 PM (GMT -6)   
Have you considered using one of those voice programs like Dragon?
I use my voice program when my hands hurt too much to type.

I usually don't tell anyone when my pain is at a "normal" level (3-5). If I'm in a lot of pain I'll grunt some and complain some: "Oh, my back's out again" or "Hmm, my hands are stiff today" or "Whew, I'm pooped".

You're hands sound like arthritis happening. Please ask your doctor before they get worse.
Joy

BEW_thatwasfast
Regular Member


Date Joined Sep 2011
Total Posts : 51
   Posted 9/16/2011 9:24 AM (GMT -6)   
Thanks Tater!
 
That's a great idea.  I haven't really checked those out since their inception, and I'm sure the software has come a long way with voice recognition.  LOL, I remember being a teenager and trying it out with a bunch of D&D buddies.  It was pretty comical, along these lines:
 

nor Josh out the Boers husband

Zsa Zsa Gabor’s Husband

.

horrible quince indents

horrible coincidence

.

some dinner on the PlayStation

somewhere around the police station

.

Bush ministration

Bush Administration

 

Hope that put a smile on your face this morning.  tongue  

 

RE: the hand deformities, I did some research and ulnar deviation can be from SLE, RA, or arthritis.  So you're right I need to follow up with my doctor for further testing.  From what I've been reading, SLE doesn't usually cause permanent joint damage like RA does, which is sort of a silver lining.

Cheers,

BEW


dx SLE 07/2011, OCD 2006, osteoarthritis 2002

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/16/2011 5:47 PM (GMT -6)   
I still get some odd responses with mine, but you can go into spell mode and spell the word for the computer.

Take care. :))
Joy
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