back from the rhumies again...

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shoeless
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 9/17/2011 11:05 AM (GMT -6)   
well,she said it could be lupus...its been positive for 2 years now.says shes gunna do blood tests.I told her my friends markers never showed till later,and I have almost all the symptoms,so she says"yes,it could be".I sure will be nice to get a diagnoses.One way or the other.I told her my pain managemebt doc says its lupus and she cant really do anything as she needs to have a diagnoses.My spelling sucks..its kinda like I write backwards.I know what I want to write,but it all gets scrambled.So,Im still on plaquenil,off the elavil...trying melotonin for sleep,and see her in 2 months.Anybuddee take melotonin for sleep?how much and hows it workin?still have my machine.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/17/2011 3:00 PM (GMT -6)   
I'm on 5mg of melotonin every night. I have to take it about an hour before it kicks in for me. I have to go to sleep no later than 9:30 so I take it at 8:30.
I sleep with a Cpap, too. I hate it when my nose is stuffy with allergies.
I get "the fog" a lot too. I'm resorting to notes to keep me on track.
Joy

PJ555
Regular Member


Date Joined Sep 2011
Total Posts : 79
   Posted 9/19/2011 10:52 AM (GMT -6)   
I don't think fog even comes close to what I am feeling right now but I am in the middle of the diagnosis stage. I feel like my body is mad at me inside and out. I am interested in what this Paquinil is because you all seem to be on it. I hope I can take it because I have had gastric bypass and am limited on what I can take but if I can I would try anything right now. I am job interviewing right now and when I have to shake hands it is a religious expreience because my right hand hurts so bad it is bringing me closer to God! LOL I ache in my Hand and shoulders so badly.......boy howdy. It seems every week I begin to ached in a new area. I have noticed that everyone seems to have a hard time getting a diagnosis......anyone have a reason as to why that is?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/19/2011 11:53 AM (GMT -6)   
Lupus is the great mimic. You never know what it's going to pretend to be next.
My flares have looked like a sinus infection, bad back, tendonitis, bladder infections, gastroenteritous, and the flu (not all at the same time, TG).

Plaquenil is a DMARD. (Disease Modifying Anti-rhuemertic Drug)
It is usually used as an anti-malaria treatment, but they have found out if used a longer time at a stronger dose it can help a person with Lupus or RA.
It relieves painful joints, swelling, fatigue, and helps with the fog some.

I remember the painful hands and avoiding shaking hands during my diagnosis stage. I couldn't even hold a glass at times. I felt like a zombie who couldn't stand anything to touch me. Even the weight of the bed sheet hurt my toes.
Joy

shoeless
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 9/19/2011 3:06 PM (GMT -6)   
well Ive been on melotonin for 4 days..I dont know whether Im sleeping or just resting.I now have majoe eye pain and sinus hurt.My eyes burn so bad they water.Yeah,I had to go get a coupkle things and I couldnt even stand to hold my purse.so I dunno if its the melotonin or a flare.Feel sick too.Ok..Im going to lay my noggin down....k..talk later.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 9/19/2011 4:35 PM (GMT -6)   
Try doing some sun avoidance and see if it helps.
Broad spectrum sunscreen
SPF protected clothes and hat
UVA protective sunglasses

Fluorescent lighting can also give off UVA/UVB rays that can make us feel ill.
Joy
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