confused need help Sjögren's diagnosed but think I have Lupus also help with lab results please

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New Member

Date Joined Sep 2011
Total Posts : 11
   Posted 9/22/2011 2:49 AM (GMT -6)   
- confused recent labs from quest labs show ANA pattern1 Speckled 1:640 ,Rheumatoid Factor (RF) positive high , ANA IFA screen with reflex to tiger ANTI-NUCLEAR AB (IFA) Positive ,DNA (DS) antibody is reference range.?? My previous blood results were neg for DS antibody, but Ana speckled and RF were present previously. I suffer from fatigue constipation severe depression aches n pains severe tiredness blood often comes out my bowls hair is thinning and sheds everyday face dark spots feel swollen hard to funk shun very sensitive to sunlight feel as I'm having a hard time focusing to read I used to have 20/20 vision.I'm 39 year old female been diagnosed with Sjögren's for at least 6 years. Not taking any meds at this time. My body feels weak. Can anyone give me any advice? My mother died at age 50 with Lupus and grandmother died at 72 with Lupus and Cancer.that's why I think I also have Lupus.

Post Edited (Ms.MamaD) : 9/22/2011 2:21:51 AM (GMT-6)

New Member

Date Joined Sep 2011
Total Posts : 11
   Posted 9/22/2011 3:25 AM (GMT -6)   
confused I'm new so please bear with me,I really hope to get some help and possibly help others

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Date Joined May 2005
Total Posts : 7725
   Posted 9/22/2011 8:14 AM (GMT -6)   
I believe that there is a stand-alone specific blood test and/or biopsy that can determine, all by itself, whether you have Sjogren's or not.

On the other hand, a Lupus dx is made up of a majority of evidence, where a combination of symptoms and/or bloodwork can define the disease.

Sadly, the symptoms are pretty much the same between Lupus and Sjogren's -- except that Sjogren's most often shows up first in dry eyes and/or dry mouth.

That said, have you asked for a re-evaluation? Are you seeing a rheumy? A regular dr isn't trained well enough to tell the difference between the 2 diseases. Maybe a consult with another rheumy?

With your combination of symptoms, it does seem like you should be using some medication to control the symptoms, even if they can't come up with a diagnosis.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

New Member

Date Joined Sep 2011
Total Posts : 11
   Posted 9/22/2011 9:43 AM (GMT -6)   
at least 6 years ago a lip biopsy was taken and positive for Sjögren's.
I have eye irritation and light sensitivity always have had very bad constipation even as a child. Iv been diagnosed at UCSF in San Francisco at the Sjögren's clinic there but the didn't think it was primary so I referred back to rheumatolgy the didn't then I had Lupus because my blood results didn't show my organs were being attacked then. Just by looking at me no1 could tell but if only they feel what I'm feeling inside I wonder sometimes.I live a bit of distance from ucsf so haven't followed up so now I'm waiting to be refered back again to be seen.
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