Hi everyone, Im new here. Been reading for some time, all of your posts are encouraging and strengthening to me.
I was dx with Lupus about 6 years ago, mine is (was) relatively mild (if there is such a thing) and I have been able to continue to work full time. I have five children ages 22, 20 ,18, 15 and 5, and an amazingly supportive husband. My employer is wonderful and I am blessed to be able to work from home on the bad days.
Steroids are not an option for me. My mother has SEVERE osteoporosis at age 58, and Im already osteopenia at age 40. I just had a bone graft and lost a bottom molar to bone loss in my lower jaw. My family is a genetic mess with my father dying from colon cancer last year, my brother has stage 3 colon cancer now, and my other brother has aggressive PKD. My children are fine so far, thank you Lord.
SO... how do I fight this?? All my old tricks (resting, eating well) arent working anymore. :( What has changed? I considered going to see the doctor this morning, but really... what is he going to do? Prescribe pain meds? Muscle relaxers? I usually get back to my semi-normal state in a few days, and its not happening this time. Im a computer analyst, so I try to look at this as logically as possible, and I read as much as I can to learn about my condition. But Im at a loss. Should I try the Plaquenil again, it made me so sick last time. I had bad reactions to Methotrexate and Imuran as well. Vitamin D was mentioned since mine is at a 9... but then I read that the latest reserach says it may do more harm than good.
Today is a very bad day... and Im starting to have bad days more and more. Right now Im dealing with almost unbearable pain in my arms and legs, feet and hands. It feels like my bones are breaking. My fatigue is over the top. I can get up and move around for about 10 min, then its right back to bed to rest for an hour.
Im crying as I type this, Im so frustrated and I hurt so badly. What are some things that have helped all of you? Are any others as sensitive to medications and supplements as I am? What do you do for your severe pain that doesnt include pain meds?
Thank you so much!!!