I finally got a Rheumatologist appt.....on 10/7

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

PJ555
Regular Member


Date Joined Sep 2011
Total Posts : 79
   Posted 10/2/2011 9:29 AM (GMT -6)   
Well after getting my blood test through rolled eyes and finding out my ANA was 1:320 my symptoms matched my blood work!!!!! and I am getting some attention to my symptoms.  I cannot wait to see the rheumatologist, someone who doesn't know me and hopefully will be a good one.  I am the person who's PCP used to be my best friend as well and a co worker who for some reason she has turned against me when I became very ill after a surgery that went very badly and I wasn't able to return to work.    She became very angry at me for some reason so everytime I saw her as my doctor she seemed so angry almost venomous.  My symptoms though are such a dry mouth that I cannot describe it.  I have to stop speaking all the time to wet my mouth.  It is a pain in the night because it gets so dry I wake up and have to scramble for liquid.  It isn't thirst don't mistake it for that it is mouth dryness.  My eyes are so dry and goopy (hows that for thechnical LOL)  I thought I Sjorgens and that is why I had her do the ANA she roller her eyes but that is when the blood work came back that way.  In the mean time while this whole mouth thing was going on my right hand began to stiffen and swell, but it kept getting worse and worse and now it is to the point I can't stand it.  I can't wear any jewelry it hurts so bad to try and get a ring over my joints it makes me wince but now my swelling is so bad I just can't.  Now, I can't believe it , it is starting in the left hand, just my last two fingers right now but it's starting. 
Here is my question though has anyone felt this, I was driving the other day and on my feel like in my toe row and the front of my foot it felt like it had become electrical just burning pain.....then the pain became to throb up all into my legs.  It took my breath away.  I almost had to pull over.  It felt like a tooth ache in my legs.  I couldn't rub them enough.  If took about an hour to make it stop but wow it was awful.  After my surgery and the protein malnutrition they said that I had neuropathy but I don't know I never felt anything like this before.
t

sickinterval
Regular Member


Date Joined Sep 2011
Total Posts : 33
   Posted 10/3/2011 5:46 PM (GMT -6)   
Sorry about the pain. Glad to hear about the up coming appointment.

LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 10/5/2011 9:44 AM (GMT -6)   
Good luck at your appt. Please make a post about how it went.

PJ555
Regular Member


Date Joined Sep 2011
Total Posts : 79
   Posted 10/5/2011 1:28 PM (GMT -6)   
Thank You I will! I have lost all hope I really have. I feel so bad all the time. I hurt all over, I am so tired I can't describe it handle it, I feel like I am sleeping my life away but I have no option. I shut down and it isn't an option I got to sleep whether I like it or not. While I am driving I wake up at a traffic light and the car is rolling I try and talk on the phone to stay awake I am afraid to 5 hour energy drinks again like I did before because I think they had a monumental role in the large surgery I had to have for my gallbladder that started this whole mess. I will be bald within a month if my hair keeps falling out at this rate and I only wish I was exagerating but I am not. I haven't worked in 4 months so all my reserves are gone and I feel so terrible all the time how am I supposed to go back to work? I barely have been able to handle the interviews I have been on. I can't even concentrate on the interview questions my head is so dang fuzzy. I am so hopeful for Friday but so scared that it will be an iron door again another dr that has 5 minutes to say "uh huh, uh huh" and walk out the door. I feel like taking an extra $100 in my pocket and saying if I give you this will you stay here with me and REALLY listen and help me?

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 10/5/2011 3:50 PM (GMT -6)   
I hope you find a doctor that listens. I have my first rheumy appt on Friday as well and received the paperwork confirming it today and it says the initial appt will be 30-45 mins minimum so hope that means someone can get to bottom of this thing, hope your appt gives you the same amount of time to explain what has been happening. Good luck.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, azathioprine, codeine, immodium, simethicone.

sickinterval
Regular Member


Date Joined Sep 2011
Total Posts : 33
   Posted 10/5/2011 8:19 PM (GMT -6)   
PJ555, I know its hard but hold on to the little things that make you happy. Many of us have been there or are starting to recover from there. (((hugs))))

PJ555
Regular Member


Date Joined Sep 2011
Total Posts : 79
   Posted 10/5/2011 9:35 PM (GMT -6)   
Thanks everyone, I guess I am bitter as well as sick. I lost so much, I mean I know you all have lost so much as well, but my doctor was my best friend and she just stopped being my best friend and I don't know why. I lost my job where we both worked and we talked at least 3 or more hours a day we talked allllllllll weekend long we were talking all the time. We knew everything about each other. The second I got sick she disappeared out of my life and I just don't get it. I also lost everything else. My job which was my idenity I was good it was what I did and what I was good at. I was looked up to there and was the best and I don't have that anymore. I have lost so much money. I am MAD because a doctor caused a HUGE portion of this because he stopped this surgery in February and I wasn't this sick in February and I wouldnt have had this back then. I can't sue him becuase I didn't die. The legal system wasn't there to protect me. Evidentally the system is to protect the doctor and he said they would crucify me even though according to him it was clearly neglegence looking at my medical records, he was so sorry it happened to me but these types of suits are expensive and doctors don't go against doctors and he doesn't want to see me go through more pain. He did say that I could file a complain with the medical association. I have to somehow get over the bitterness because being this sick and going bald is enough to deal with.
Thanks for all your support I am glad I found this site and I will seriously try to quit whining I really will, if you knew me you would find it so out of character for me. I am such a "cup half full" type of gal. I am such an optimist but this situation has taken my joy and I simply must get it back.

Worthit
Regular Member


Date Joined Nov 2011
Total Posts : 212
   Posted 11/3/2012 12:19 PM (GMT -6)   
 Hi PJ555 I've read your story and a simiular thing happened to me when I became ill. I lost several "friends" that I was close to and one that was a life long. I thought about it and wondered why they abandoned me after all that weve been through and all that I had done for them. I was there for them through some harsh stuff "mentally and financially" and when it was my turn they were gone in a flash.... After some time I got over the fact that they werent real friends and got bitter at myself for not seeing it. Now I've realized that what is actually happened is that certain people just cant deal with the stress of watching someone they love fall on harsh times and just need to distance themselves from that burdon.  Its just human nature that some people aren't strong enough for the challenge. Even though your "friend" is a Dr. and is able to work with very sick people he/she may just cannot find a way to deal with watching someone they love through bad times. I'm just speculating and cant say for sure but this is only my experience.
  Whatever the case,the friends you make from now on will have a better foundation to develop from since they know you as you are now. It was tough on me but it passess through several stages to get over. 
  I forgave them.... 
Alone we can do so little, together we can do so much
Call me Jimmy;-)

Cirrhosis,osteoarthritis,back,knee,hip, extreme flat foot,falling arches, hammertoe,out-toing and bone spurs(will be requiring major foot surgery on both feet). Had kidney tumor removed.Neuropathy- deteriating nerves,Osteomyelitis and Insomnia Hoping to be diagnosed with a good sense of humor ;-)
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 12:19 AM (GMT -6)
There are a total of 3,005,625 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161787 registered members. Please welcome our newest member, melzissa.
258 Guest(s), 1 Registered Member(s) are currently online.  Details
Thunderdaytona