Has anyone found natural medicine/diet helpful?

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Katherine B
New Member


Date Joined Sep 2011
Total Posts : 11
   Posted 10/3/2011 9:06 PM (GMT -6)   
Hi,all! I found a rhuematologist in Fairbanks! I'm making an appointment tomorrow as they wanted me to bring in blood results. I had another question; has anyone tried the natural route for lupus type symptoms? And did it help? My doctor (he's an ND) wants to try a ton of vitamins, (multi, zinc, vit. D), and several supplements for joint pain and immune function. He also says because my ANA is only 1:80 it could be allergy type issues so he want me to try a comprehensive elimination diet. I just don't know about this honestly. I've known several people who have tried these type of diets and haven't seen a lot of results. Plus I guess I can see allergies (and I do have lots of them) causing joint pain and inflamatoin but can they cause fevers and swollen glands? I have had glands in my neck and throat, on the sides of my breasts, and one up on my neck right at the hairline swollen for almost three months now.I have tried two antibiotics and I guess the blood tests are saying it's not an infection anyway. I just don't know- this diet is a HUGE pain. It's also one more thing when tired, sick and already overwhelmed. I'll try anything that might help but... Has anyone out there tried this? Please let me know how it worked for you. Also, can you have lupus if your ANA is 1:80 and the ANA choice specific AB cascading reflux comes back negative? My doctor seems to have written it off. Thank you so much.

suetoo
Regular Member


Date Joined Jan 2006
Total Posts : 395
   Posted 10/4/2011 8:36 AM (GMT -6)   
Hi! Katherine,
A positive ANA USED to be the gold standard for lupus diagnosis. Now, an up to date dr. knows better, that it is one of MANY diagnostic criteria that is just one small part of the complexity of what autoimmune disease is. A good, experienced and up to date dr. won't rule lupus out based on what a lab calls a 'normal' or 'low-positive ana. That's why it is so important to find a good rheumatologist. I was diagnosed with asthma 13 years before lupus was figured out, and I finally caved to my rheumies pressure to have allergy testing. We had a bet, and he owes me a nickel. I went in for dozens of little tiny needle pricks all over my arms, and lo and behold.....NO ALLERGIES. Nary a one.....and he couldn't believe it and said, and I quote...."boy, you have quite the autoimmune illness" and I KNEW I didn't have allergies, and I KNEW I was only asthmatic, with acute  bronchoconstriction, when I had a respiratory iinfection. Because I had taken so many antibiotices, my dr. felt it important to know my allergy status. Treatment for allergies is very different than infections, and I kept getting pneumonia. So at least we know. And since many pts. with lupus are found to be especially deficient in B12, and Vit. D, and that prednisone really does cause osteoporosis, calcium is important, it is a no brainer that those would be good things to take. But it is always better to get your nutrients and vitamins from a good balanced diet. Gluten free seems to be the new buzzword for what might fix what ails us, and I am not sure I buy into it. However, some people really do feel better when they are gluten free. Since lupus is characterized by remissions and exacerbations of symptoms, I would argue that how could we really know if it was the restrictive diet, or the natural pattern of AI symptoms coming....and going.......and coming and .....it's enough to drive a moose to drink tongue
hugs and good luck,
sue too
ps. there is a good link here somwhere that explains the diagnostic criteria for lupus. Lynnwood would know. I found it very helpful to read old topic threads and made a list of questions for the neuro and rheumatologist before I saw them.

God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U, Calcium, Flector patch prn, Ambien and Elavil every night. Advair, Albuterol and DuoNeb inhalers.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7720
   Posted 10/4/2011 9:30 AM (GMT -6)   
Hi there,

You can find the most current diagnostic criteria by following the link in my signature.

I haven't seen any valid scientific evidence that shows that diet alone can aid with auto-immune diseases -- in fact, I have seen where some foods that are touted to "boost the immune system" should actually be avoided. However, common sense would be that diets with fresh fish, chicken, vegetables and fruits would be better than eating soft drinks, chips & dip, and the like.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

Katherine B
New Member


Date Joined Sep 2011
Total Posts : 11
   Posted 10/4/2011 8:55 PM (GMT -6)   
Thanks so much for your replies. I know we new people probably ask the same questions over and over! We actually work with local farmers to market their products so I always felt that we eat pretty healthy. I just don't know about such a restrictive diet , and I do agree that with all this stuff coming and going how would you know what really helped. I have been doing a lot of research but it really helps to talk to people who have gone through similar problems. Hopefully the rheumatologist can get me in soon. Thanks again
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