Well it has been 3 months since all this started. Just a little update. I had an EMG/NCV, the result mild CTS, chronic R-c5-c6 and L5/S1 radiculopathies, Myopathy. The distribution of the myopathic findings may suggest inclusion body myopathy, but is also possible the neuropathic changes on #2 may be masking myopathic findings in more proximal muscles. The lack of active denervation indicated lesser likelihood but does not exclude polymayositis. Correlate clinically,
First what does this all mean. My neuro just said there is myopathy in my forearm(distal) and in my proximal muscle of the hip. He order MRI of C-spine and lumbar. Mri was normal, just a few DDD issures.
I did finally got steriod injection for my shoulder pain. Was told by ortho that I had bursitis. The injections has helped a lot.
Now here is my other question. My first ANA was low titer 1:40 Homogenous, and Vit d was 54, and RNP over 6. Three months later, ANA is 1:80 Speckled and Vit d 28. What could the pattern and titer change mean? Has anyone experience vit d decline?
Also, I ending up calling 911, thought I was having a heart attack. I was doing nothing, watching TV and my heart started pounding out of my chest, heart rate was over140 and my blood pressure was 210/110. I took nitro, but chest pain and blood pressure did not come down after two nitro and chewing on aspirin. So called 911. Admitted to hospital, was told nothing was wrong with heart, anxiety attack, the only thing showed up was prolong QT, but cardio did not think anything about this. Has anyone had problem with blood pressure and heart rate with MCTD?
I think the docs think I am making all this up. I know I am not. I know I should seek new docs, but am really tired and just don't have the strength. Docs keep telling me to make another appointment, but besides taking up my time and money, never get answers. This maybe wrong, but I just cancelled all my appointment with primary and cardio and neuro. What is the sense of follow up if there are no new test to dx or r/o a disease?
Sorry for the long post,
Hope someone on this forum can give me some insight as to what you have gone through before dx.
Oh, I ask again, does high RNP ever change if no med is given? My primary does not want to run it again, don't know why.