I want to start a group house for people with chronic illnesses?

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michelleisnice
New Member


Date Joined Aug 2011
Total Posts : 18
   Posted 10/7/2011 2:55 PM (GMT -6)   
 Firstly i know its a farfetched idea. i want to start a group home or something of the like for people with these types of chronic illnesses. they have them for recovering Firstly i know its a farfetched idea. i want to start a group home or something of the like for people with these types of chronic illnesses. they have them for recovering alchoholics, developementally disabled and emotional disorders, but i can't find any for people who just are too physically sick too work, except for nursing homes which are scary! I dont want to actually start a group home, that would be too difficult and impossible, just a house for a few people with chronic illnesses who can't work because of them. i know this would also be very difficult but still doable if i can find people interested and people who would respect eachothers boundaries. I want to do this because i have no family or friends to support me. Im 22 and try to go to college, its near impossible. I can barely leave my apt. i have gastroparesis and so many other problems like severe ongoing fatigue which seems to cause most of my problems. It's impossible for me to work right now i do hope to be able to some day. I get social security right now as my only source of income i barely make it financially.I can't seem to find any freinds who can relate and i am so lonely and just want a family like group of people to support me. some might suggest a church, but ive gone to several and its doesnt work cuz they dont understand either since they dont have a chronic illness. also im not a christian. just having one friend who understood would help, but i don't. Does anyone have any suggestions or any thoughts on this?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/7/2011 5:52 PM (GMT -6)   
Have you thought of advertising through a hospital?
Joy

Rovngypsy
New Member


Date Joined Jan 2010
Total Posts : 18
   Posted 10/8/2011 11:13 PM (GMT -6)   
:-)  That's a very nice thought, but not one you really want to do at such a young age.  When I was first dxed with lupus 11 yrs ago, I started a local support group because it was so hard not knowing anyone with lupus and I wanted to give myself a reason for having lupus.  I felt if I didn't do something, then I had this disease for nothing and I couldn't imagine others in my situation and having no one to turn to.  Well, as much as I dearly loved each and everyone in our group (23) it really took it's toll on me.  My daughter lived close by at the time and she helped me and there was a friend who also had a connective tissue disorder who agreed to help me too. 
 
I got so many calls and when someone was in a flare up and feeling so miserable, they would call me and talk about it, which I wanted them to do.  It's very important to have someone understand what you are feeling. The problem was I took on their disease as if it were mine too.  I became so stressed and sad all the time because that's all I heard.  I wanted to help badly, but it really took it's toll on me and after 2 yrs, I had to stop being the facilitator of the group.  I had lupus, I breathed lupus, all I talked about was lupus, everyday was about lupus and I couldn't get away from it.  When someone needed medicine and didn't have the money to buy it, I wanted to help, but being on disability I couldn't.  We all tried to put some money in a fund for those things, but it can get deplinished quickly.  So then I took on more of their pain.  It became more than I could bear.
 
Understand what I'm saying.  It's wonderful to help people, but there are lots of other things you can do.  One very important thing it did do for me, was it took my mind off me, which was a good thing.  You can volunteer to maybe read to ppl who are in nursing homes or just visit those who have no one.  You can just listen to them.  It offers a huge reward. 
 
I can understand how hard it is for you to make friends when it seems no one wants to have a friend who can't go places with them or do things.  Most ppl don't want to hear about how you feel or how hard it is for you.  It drags them down. 
 
It sounds like you may have CFS (chronic fatigue syndrome) and maybe you can look for a support group in your area and try going to a few meetings. You can meet ppl that are like you which makes a huge difference.   You said you have no family or friends to support you.  Does that mean you have no family? or none that believe in you or have time for you? You can email me anytime when you are feeling down or lonely.  I will listen or help in any way I can.
Rovngypsy
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