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tpw
New Member


Date Joined Oct 2011
Total Posts : 1
   Posted 10/7/2011 11:35 PM (GMT -6)   
I had mono in 2002.  It was diagnosed with normal mono symptoms and an elevated ANA titer.  Since then, I have suffered from extreme fatigue, chronic pain in joints and muscles, random swelling that causes extreme pain, flare ups that last sometimes a week where I have to stay in bed. I have chronic headaches and a MRI shows lesions on the brain. I have a heart condition that started out as an arrythymia and ultimately had a small heart attack in a small vessel of the left ventricle.  I still have random chest pain that I have attributed to stress.  I have a rash on my cheeks that comes and goes and sores in my mouth.  And of course, with all of this, you cannot help being depressed.  Most recently, I have suffered hot flashes first just at night and now during the day.  I am 45.  My doctor ordered blood work and the only thing abnormal is the ANA of 1:160.  The doctor said with my blood test and my constant symptoms, I could have lupus and has referred me to a rheumatologist.  It is sad, but I am almost welcoming a diagnosis because I feel like I am going crazy. 
 
From all of your experiences, does this seem to be lupus or any other AI.  Any input is greatly appreciated. 

LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 10/8/2011 12:52 PM (GMT -6)   
My ana was 1:160 when I first became
sick. All your issues do sound like lupus in my opinion just from my own experience. I only have had that rash twice thank god. I have fatigue issues, random joint, body ache/pain and random chest pain. I also had major lymph inflammation. I also had sores in my mouth sometimes 2 at the same time pretty much every week or so(that has subsided).

Right now I'm on medicine which has helped with the fatigue and inflammation but not so much the pain/ache of joints(having shoulder issue right now).

Also do you have a general feeling of just not feeling good? I think its called malaise and is another sign of lupus.

Good luck at your Rheumy appt. The key is to find a good Rheumy so you can get a proper diagnose and start treatment.If you feel like you are being dismissed at all its time to look elsewhere.
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