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New Member

Date Joined Oct 2011
Total Posts : 1
   Posted 10/7/2011 11:35 PM (GMT -6)   
I had mono in 2002.  It was diagnosed with normal mono symptoms and an elevated ANA titer.  Since then, I have suffered from extreme fatigue, chronic pain in joints and muscles, random swelling that causes extreme pain, flare ups that last sometimes a week where I have to stay in bed. I have chronic headaches and a MRI shows lesions on the brain. I have a heart condition that started out as an arrythymia and ultimately had a small heart attack in a small vessel of the left ventricle.  I still have random chest pain that I have attributed to stress.  I have a rash on my cheeks that comes and goes and sores in my mouth.  And of course, with all of this, you cannot help being depressed.  Most recently, I have suffered hot flashes first just at night and now during the day.  I am 45.  My doctor ordered blood work and the only thing abnormal is the ANA of 1:160.  The doctor said with my blood test and my constant symptoms, I could have lupus and has referred me to a rheumatologist.  It is sad, but I am almost welcoming a diagnosis because I feel like I am going crazy. 
From all of your experiences, does this seem to be lupus or any other AI.  Any input is greatly appreciated. 

Regular Member

Date Joined Jul 2010
Total Posts : 468
   Posted 10/8/2011 12:52 PM (GMT -6)   
My ana was 1:160 when I first became
sick. All your issues do sound like lupus in my opinion just from my own experience. I only have had that rash twice thank god. I have fatigue issues, random joint, body ache/pain and random chest pain. I also had major lymph inflammation. I also had sores in my mouth sometimes 2 at the same time pretty much every week or so(that has subsided).

Right now I'm on medicine which has helped with the fatigue and inflammation but not so much the pain/ache of joints(having shoulder issue right now).

Also do you have a general feeling of just not feeling good? I think its called malaise and is another sign of lupus.

Good luck at your Rheumy appt. The key is to find a good Rheumy so you can get a proper diagnose and start treatment.If you feel like you are being dismissed at all its time to look elsewhere.
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