lichen sclerosus anyone?

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jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 10/10/2011 8:30 PM (GMT -6)   
Does anyone here have lichen sclerosus? I finally got diagnosed with that today. It is apparently seen in people with AI diseases. I got diagnosed today at the gynecologists. In the past few years,I've been told it was yeast all 3 times. I'd get these paper cut like things in the vaginal area externally and rectal areas. I've been to 3 docs in the past few years. Finally a diagnosis. I am having frequent UTI's so they are doing an ultrasound later this week. I swear, I stay at the doctor's office. They said low estrogen can also cause it. Given my age, that's probably true. I was curious if anyone had it and how they treated it.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, Colon resection Nov. 2010, now in remission!
inflammator arthritis, type 2 d, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, synthroid, plaquenil, lactose intolerant, benicar
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern 1:180, high sed r

mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 1/13/2013 12:07 AM (GMT -6)   
I don't have lupus (well I still think I may have it - long story), but I do have Crohn's Disease (another lovely AI disorder). For the past several months, I have had severe vaginal itching and burning. I also had a rash. To avoid getting too graphic, I also experienced the paper- cut issue. I was treated with some sort of steroid/antifungal cream for the rash and burning. It helps a lot. In addition, the culture came back showing a vaginal bacterial infection, so I was treated with an antibiotic using a vaginal suppository. That helped too.

Maybe it is an AI disorder issue. I also have psoriasis in my scalp and in other places.

Maybe it's a Crohn's issue. I have had numerous watery bm's every day since my resection. I thought maybe it had something to do with that.

Post Edited (mimik81) : 1/12/2013 11:12:10 PM (GMT-7)


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 1/13/2013 7:19 AM (GMT -6)   
mimik, yea, they gave me steroids and mupricin to clear all that stuff up. At one time though, my primary care nurse practitioner thought it was yeast and it was NOT. It's a lot better now but if I still have some problems with getting tears around that area. I am in my 50's and finally had to go on oral hormone replacement to help with all those issues. It was a multi faceted problem and the hormones really helped. I was also getting UTI's here lately. Good luck with everything. Some of us on here with auto immune issues have a whole host of problems but we make it through each day with the support from our friends here. I know when I had colitis, the people on the crohn's forum completely saved my sanity.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, Colon resection Nov. 2010, now in remission!
seronegative RA, type 2 d, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, synthroid,
Positive ANA speckled pattern 1:180, high sed r

mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 1/14/2013 10:55 PM (GMT -6)   
Well, I'm in my early 30's. This gives me much fun to look forward to! Yeah right! Haha!
Diagnosed with Crohn's for 13 Years
First Resection 05/19/09 - Currently Medication Free!

Tried Prednisone, Flagyl, Pentasa, Imuran, and Humira (Humira gave me drug-induced Lupus)

Accountant and Mother of 2 (6 yrs. and 1 yr.)
I don't have time to be sick!!!
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