Lupus Anticoagulant

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gymbo1
New Member


Date Joined Oct 2011
Total Posts : 6
   Posted 10/13/2011 7:39 AM (GMT -6)   
Had anyone been on therapeutic levels of coumadin and still experienced a clot? Frightenened by this prospect.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 10/13/2011 6:37 PM (GMT -6)   
I was dx with antiphospholipid syndrome after son was stillborn, have not had any blood clots since and not on any meds as have Crohn's and cannot take aspirin and doctors wouldn't want to consider anything else unless I have a clot. Sorry, that's not really a lot of help, have you had a blood clot, I presume so for them to test you and hope that this med works for you and someone can come along soon with more help to put your mind at rest.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.

Latina_B
New Member


Date Joined Oct 2011
Total Posts : 10
   Posted 10/15/2011 1:47 AM (GMT -6)   
It's unlikely that would happen. Coumadin/Warafin is supposed to thin the blood out. Now if you were taking other medications that interact with the anticoagulant then there might be a chance you might develop a clot. That's why you should always listen to what your doctors tell you and not take any O.T.C (Over The Counter) medication without consulting your primary doctor first. That's what I've been told anyway. Hope I helped in some way.

gymbo1
New Member


Date Joined Oct 2011
Total Posts : 6
   Posted 11/3/2011 2:46 PM (GMT -6)   
I checked out the Hughes Syndrome website(Hughes Syndrome is another name for the antiphospholid syndrome). They discuss the debate over Coumadin levels. They also site one research study of 1,000 people with this syndrome , who still clotted despite anticoagulation. I read the study and started to panic. It still haunts me!
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