I have felt alot like what you describe, too. My rheumy didn't really listen but he sent me for a neuro consult because my reflexes were absent. When I saw him, I was so grateful he listened to my descriptions of my sense of overwhelming anxiety and screaming nerves. I COULD NOT rest even with Ambien. He gave me a trial of trazodone, which gave me no relief and such cotton mouth I could hardly separate my tongue from the roof of my mouth. And then amytriptyline, 10mgs, which has been such a blessing. It has helped immensely, especially with the screaming in my nerves and even the horrible burning in my legs. My drs. had been great about antidepressants but they didn't help because I wasn't depressed. Just p*4*&%^&* and sad that I was so sick all the time. And I have found it always got worse when I tried to taper my prednose down too far. I hate adding another med to my list, but it truly had become a quality of life issue.
hope you feel better soon,
God knows, even if I don't....
CNS Lupus 2005, APS, Hashimoto's Thyroiditis, Degenerative Osteoarthritis, Asthma
Meds: Plaquenil, Neurontin, Thyroid, meloxicam, Aspirin, Atenolol and Norvasc, Prednisone 5mg daily. (20-40mg prn), Vit. B12 2400 mcgs, Vit D 1000U, Calcium, Flector patch prn, Ambien and Elavil every night. Advair, Albuterol and DuoNeb inhalers.