Posted 10/16/2011 1:19 AM (GMT -6)
Ok, I am the person with the gallbladder surgery that went as far south as the cliche will allow it to go. While trying to recover from all of this I just can't believe how nothing is making me feel better...at all!!!!!!! I have always had autoimmune problems both of my children do, one is very chronically hit with Type 1 diab and Hashimotos disease and my daughter has Graves disease and polycystic ovary syndrome, my moms sister died from MS and my mom as hashimoto's too.
Anyway I have had doctor problems since this surgical removal of gallbladder, hernia, appendix and subsequently my job, 1000's of dollars and the list goes on and on. However I had an appt on Oct 7th and he is not leaning to heavily on the Lupus diag even with ANA of 1:320 and numerous side effects. On Thursday something amazing happened.....are you sitting down.....I received a call from HIS office to give me some of the test results that he had gotten back. I was shocked, I have stopped calling doctors or persuing things but WOW!
Anyway, my vitamin D level is super low! It is only a 15 and evidentally normal is 32-100. My calcium is low and my liver enzymes are elevated. So, he is ordering more blood work because now he wants to check my parathyroids. (I already had my thyroid removed) I had it removed 27 yrs ago though but my parathyroids were paralyzed for a few days but resolved themselves. He is also checking for autoimmune hepatitis. The new gastro doc I saw a month ago wanted to do 2 scopes on me one down the throat (difficult on me cuz of gastric bypass cuz you can't see much, and a colonoscopy. There is MUCH talk about during this major surgery that possibly something got knicked or I have some sort of leak. Another scenario is because I have had random blood levels before but none like these is that I have had some sort of problem and this has created a "major flare" of some sort.
Until all of the rest of the results come in they have added 50,000(I don't know if its mcg, mg or what) twice a week. They are going to draw an INI blood test and I have to starting taking thiamin as well. I want to no what it is that I am going to get to take to make me not go bald within the next 4 to 8 weeks. God I wish I was kidding....: ( I also would love to be able to stay awake. When this tiredness comes over me it is like a heaviness that makes it hard to breath. It even feels like my organs are tired.
I wish I knew what all tests he ordered. I am just so happy that he seems to care. What a blessing