Afriad the Dr may be right

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Ebby
New Member


Date Joined Oct 2011
Total Posts : 3
   Posted 10/25/2011 10:43 AM (GMT -6)   
I went to the doctors the other day with myoalgia and joint pain, fatigue (some days better then others), upset stomach /inconsistant bowels, redness on my face that I though was Roceaca but am started to think it is a malar rash (it fits better), worsening Raynaud's phenomenon, low grade intermitent fever, dry irritated eyes and a tightness when I take a deep breath. The doctor suggested Lupus and since then I have been looking it up, what scars me if that it fits. about two years ago I had a really bad rough of the same symptoms. I changed diet, started working out, and taking different supplement and it calme down and got better. That was when the Raynaud's phenomenon was triggered. Since then I have kept a low level of pain and discomfort in body and joints and intermitent stomach issues, along with intermitent redness on face on cheek and nose sometimes in between my eyes.  I am beginning to think two years ago may have been my first flare and I am having one now. I was given celebrex for pain which is doing nothing. I am stresed about the probability of it being Lupus and what that means for me and my life.
What does having Lupus mean for you and how has it changed your life? I want to have alot of kids, is  miscarring a real concern? Also what can I do to lessen the pain, discomfort and fatigue. I also have ADHD, and what is going on seems to be worsening my concentration and memory, the last thing I needed. Please help, I am only 25 and people I talk to don't understand what I am going throug; not just the idea of Lupus but also what I am going through physically. It is scary.

sickinterval
Regular Member


Date Joined Sep 2011
Total Posts : 33
   Posted 10/26/2011 6:02 PM (GMT -6)   
Hi,
It is scary and unless you have lived it, it will be hard for others to relate. I think the constant crummy feeling and FATIGUE are the worse. During this last flare I have 35lbs. People now comment on how great I look (Was 198 now 162). It's frustrating because I feel like crap and I know they do not want to hear the details. I am lucky in that my family is very supportive and that my health is steadily improving. I take planguin (SP) I do acupuncture, meditation and have change my eating habits. (It sure is easier to eat healthy when your never hungry.) I am 42 and before this last flare was healthy for 10 years.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/26/2011 6:50 PM (GMT -6)   
I'm new to lupus also. I was just diagnosed this last summer. Plaquenil and mobic helped me a lot with the fatigue and pains. In emergencies I take a tramidol to help breakthrough pains.
I have my good days and my bad days.

If you want to have children you need to see a high-risk OB/GYN. You also need to be tested for the special antibodies that can cause miscarriages.

Lupus is scary because of the unpredictablity of it, but soon you'll learn to roll with the punches and come out fighting.
Joy

C/Z Fan
New Member


Date Joined Apr 2011
Total Posts : 19
   Posted 10/26/2011 10:00 PM (GMT -6)   
Lupus can be manageable. I've had it for 20 years. I've been lucky and only get flares about once a year, if that. I've learned to pay close attention to how I feel, take my meds (plaquenil) and get plenty of sleep. Last year I had the scariest bout and had pleurisy for about 10 months but with proper care from my rheumetologist, I'm back to the gym on a regular basis and feeling much better. Good luck!

Ebby
New Member


Date Joined Oct 2011
Total Posts : 3
   Posted 11/1/2011 8:08 AM (GMT -6)   
I know sleep is something important that I am missing, I know. I have had tightness in my chest that start about two years ago but was only when I smoked. I have cut down and am about to start wellbutrin to aid in quiting, but now a deep breath is uncomfortable, including trying to breath while laying on side in certain positions. I am concerned about the affects it will have on pregnancy but at this point I am in so much pain that I don't see my body being able to carry a child if I needed it to.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/1/2011 5:26 PM (GMT -6)   
Go see a pulmologist and get your lungs checked for asthma problems.
Joy
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