Sun Sensitivity

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paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 10/30/2011 3:12 AM (GMT -6)   
I'm hoping someone can help me. I'm not officially diagnosed with Lupus, but my last report from the rheumatologist says "probable Lupus" and "probable Sjogren's Syndrome". I'm just confused!

I'm currently on Plaquenil (300mg a day), Doxycycline, Meloxicam, Omeprazole and Prednisone (on 5mg currently, down from 30mg).

about 2 weeks ago I was out in the sun for 10 minutes and broke out in a raised, red rash that looked like zebra stripes all over my feet and legs. The next day my joints were swollen and I was extremely fatigued and nauseated.

The other day I was waiting for the bus and the sun was out and I developed a bruise-like rash after being in the sun.

Yesterday I was sitting in the sun for a few minutes and then I started feeling really sick, I threw up, severe migraine, dizzy (I have low blood pressure) and extreme fatigue. Today my joints are swollen, I'm tired and just feel flu-like.


I spoke to my GP who said that my zebra stripe rash sounded like solar urticaria. She was going to ring my rheumatologist to discuss this with him, but I haven't heard anything. She said she thought it may be a symptom of my autoimmune disease but could be a reaction to the medications.

I'm wondering if my experience sound like typical Lupus sun sensitivity or does this sound more like drug induced?

Thank you.

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/30/2011 2:40 PM (GMT -6)   
It sounds like my reactions to the sun and a little more.
Try using a broad spectrum sunscreen lotion, a sun protective shirt, sun hat, and sunbrella.
Joy

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 10/30/2011 3:44 PM (GMT -6)   
Thanks. I'll be keeping right out of the sun from now on! Pretty lame because it's nearly summer here!

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/30/2011 5:37 PM (GMT -6)   
It's becoming winter here in the USA. Keep an eye on the UV index in your area. I react to anything over a 3 on the index. Make sure to avoid days with a rating of 9 or 10. I spent most of my summer inside with the shades drawn this year.
Joy

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 10/30/2011 6:25 PM (GMT -6)   
Thanks Joy, I use to love summer. I have a feeling this summer is going to suck! How do I check the UV index? I've checked on a few weather websites for my area but I can't see anything. I really like being outside so this is going to be a major downer =[

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/31/2011 2:00 PM (GMT -6)   
Weather.com has the UV index posted everyday. Just type in your town and it will bring up the local weather. Roll down some and you can see the UV for the day in the extended forcast area.

I've been outside for the last 3 hours setting up my yard for Halloween trick-or-treaters to visit. I do a haunted porch every year and give away about 15 pounds of candy to visitors. I'm now resting until 6pm when the sun starts to set and the tricksters start coming. Babies and toddlers come before sunset. I'm dressed as a butterfly for them. I do scarier stuff after sunset for the older kids.

Do you do Halloween or something like it in New Zealand?
Joy

BEW_thatwasfast
Regular Member


Date Joined Sep 2011
Total Posts : 51
   Posted 10/31/2011 2:17 PM (GMT -6)   
I don't know if it's sun-induced or drug-induced, but the result is the same - you gotta stay outta the sun! I live in the Sunshine State of Florida, so it's an issue for me all year round. I tried high UVA/UVB sunblock, but I hated how greasy I felt. I've since switched to wearing UPF 50+ clothing instead, and so far it's worked like a charm. I also have a ton of hats, umbrellas, etc that I use to stay out of the sun.
dx SLE 07/2011, OCD 2006, osteoarthritis 2002

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 10/31/2011 6:16 PM (GMT -6)   
Thanks couchtater, it says 4 for my city for the next few days. I'm not sure how accurate it'll be because it's an American site and I'm from New Zealand! Wow that's so cool! Halloween isn't really that big here. I took my dog out for a walk last night and saw a few trick or treaters, but most of them don't even dress up! It sounds like good fun though!

Thanks BEW_thatwasfast. I guess I'm fortunate I don't like in a very sunny place, but it is coming into summer here. Thanks for the advice. =]

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/1/2011 5:43 PM (GMT -6)   
I found out you can buy a special additive to wash your clothes in to make them SPF protective for at least 20 washes. It's made by RIT dyes.

I understand that they report world-wide weather, too.
Joy

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 11/1/2011 7:41 PM (GMT -6)   
Thanks I'll look into that.

BEW_thatwasfast
Regular Member


Date Joined Sep 2011
Total Posts : 51
   Posted 11/3/2011 1:29 PM (GMT -6)   
Joy, thanks for the tip! Those UPF 50+ clothes are expensive, so being able to treat regular clothes with an additive would DEFINITELY save me some moolah.
dx: SLE 07/2011, OCD 2006, osteoarthritis 2002
rx: plaquenil 200mg/day, methotrexate 10 mg/week, NSAID for pain, zoloft 200 mg, folic acid

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/3/2011 4:03 PM (GMT -6)   
I know I paid $48 for a shirt that I use as a cover up when I'm outside. I have two of them and rotate them weekly. Since I use them like a jacket they don't get dirty very quickly.
My other clothes are heavy enough to block the rays.
Joy
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