Hi, I'm new here
My name is Kelly, I have been recently diagnosed with Lupus Panniculitis, with overlapping SLE symptoms. I kept testing negative for lupus in blood tests, but once they biopsied my masses they came back positive for lupus panniculitis.
So far I can get next to no info on this. I live in On, Canada and am waiting to get into the lupus clinic here. Not sure on the wait list though.
I'm really struggling with this, I have almost all the symptoms of systematic, but with the added bonus of inflammed masses of cells in my subcataneous fat tissue. They're painful, feel bruised, and I'm getting more despite being on Hydroxy Chloriquine 400mg/day.
The Rhuemy I see doesn't want to start me on prednisone, which is fine with me. But after 3 weeks I'm still not getting much in the way of relief...
Not sure what I'm really looking for, maybe someone that can relate, or even anyone else that has heard of this??
I'm finding Lupus to be a very lonely depressing disease