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??????
New Member


Date Joined Nov 2011
Total Posts : 4
   Posted 11/1/2011 8:47 PM (GMT -6)   
Ok here it goes I have AI that runs in my family, mom rheumatoid, sis sarcoidosis, neph AI cancer(lymphoma?) so my dr is testing me My symptoms are iron deficiency anemia, fatigue, achy everything, numb hands to the point they felt on fire couldn't open a med bottle, so my test came back ra norm, Ana +, scl-70 norm, c4 low 11, homogenous titer 1:80, ribosomal norm, sm and sm/rnp norm, thyroid norm, the only thing that I'm waiting for now is ss-a and ss-b but I don't think it's that I need help to understand what else could it be

Lynnwood
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Date Joined May 2005
Total Posts : 7725
   Posted 11/1/2011 11:09 PM (GMT -6)   
You don't think it's Lupus? Has a rheumotologist diagnosed anything?

I guess I don't understand what you are asking.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

??????
New Member


Date Joined Nov 2011
Total Posts : 4
   Posted 11/2/2011 5:13 AM (GMT -6)   
Hello lynnwood i guess what i' m asking, is it still possible with those kind of test results to have lupus and doesn't my symptoms measure for anything my mom tested negative twice before they diagnosed her with Rheumatoid

??????
New Member


Date Joined Nov 2011
Total Posts : 4
   Posted 11/2/2011 5:20 AM (GMT -6)   
I think I have all these questions and don't know how to ask or what to ask my mind is racing.......... I haven't seen a rheumatologist yet I guess that may be the next step I have to wait to see what the doctor says

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 11/2/2011 10:03 AM (GMT -6)   
Check out "Diagnosing Lupus" in my link below. The Lupus Organization diagnoses based on a "4 of 11" criteria, where only one is a blood test, the others are symptoms. However, some rhuemotologists want to use ONLY blood tests, while others use ONLY symptoms -- the good ones use both.

Keep in mind that a regular doctor is NOT really qualified to diagnosis lupus -- you will want to see a rheumy - and since your mom & sister have illnesses diagnosed/treated by a rheumy, I wouldn't wait, instead proceed directly to the rheumy.

The most important item is to begin treatment for your symptoms -- sometimes the diagnosis comes after the treatment as auto-immune disease is tricky to diagnose!

Hope you feel better soon!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

??????
New Member


Date Joined Nov 2011
Total Posts : 4
   Posted 11/2/2011 4:16 PM (GMT -6)   
Thanks I think I'm going to make an appt with their doctor to ease my mind.

Lynnwood
Veteran Member


Date Joined May 2005
Total Posts : 7725
   Posted 11/2/2011 7:49 PM (GMT -6)   
Sounds like an excellent plan! Take list of all symptoms, whether you think they fit Lupus or not, the time frame when they occurred, and a copy of all the labs your dr just ran.
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde
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