can i have a normal blood work with lupus

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chaneltina36
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/8/2011 3:02 PM (GMT -6)   
My name is Chanel and I a single mom of four ones in college now but three more are still at home can't complaint. Well for the past year my health seem to be going down hill and no one has any answers just alot of test. My first set of systems were infections that I kept getting in my eyes and nose and ears soars i think. Then mild fevers the hair with looks like soars on my hair the same area were my hair is fall out only along the edges, lost weight and sleeping a lot. Then the next set of systems came like I would get a red rash raised circle rash on my leg and arm it would last mybe 10 minute. When I am in the sun which ever arm is under the sun light I would get a itchy rash then I started get muscles weakness in my arms and legs making very hard to walk or reach over my head or drive my car. Now I have kidney stone low vitimin D and potassium and a infection in my urine. I keep getting pain in my lower back and dry mouth and cough my lungs feel fun like there fluid or something in my chest area. I get dizzy when I breath in always feel nausea my periods are different my whole body is doing strange things and its causing a lot of pain for me. I also had the ANA blood work done and its normal. My feet and fingers sweel up only in the morning time when I wake up and go away on its own. Can AnA test be normal? My heart beats feel different sometimes like I'm out of breath and I could just be sitting, red small bumps on arms and legs and a rash in the center of my chest my eyes are dry all the time. Pleases help me point my doctor in the right direction what blood test should I be getting. I think it lupus or something that runs in the same family..

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 11/8/2011 4:30 PM (GMT -6)   
Your symptoms do sound a lot like lupus.
There are other ways to diagnose lupus. Some doctors stick with bloodwork only, some with symptoms, but the best use both ways.
Ask you doctor to send you to a rhuemtologist (sp?). You need more bloodwork.
There was 11 different blood tests my rhuemy did on me besides the ANA. I can't name them all off the top of my head.

Meanwhile avoid the sun as much as possible. If you have to go out use a good broad spectrum sunscreen, a sun protective shirt, and sun hat. Florescent lighting will also give off the UV light the sun has too that causes the rashes.
Joy

chaneltina36
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/8/2011 6:39 PM (GMT -6)   
Thankyou joy. I meet with my doctor tomorrow and I will talk about the other blood work. Last night I had a pain for about a minute in the corner of my right eye it felt like pressure very painful and did'nt last long but it felt long. Today I felt discomfort in the center of my chest beening feeling sick like I have the flu when I wake up and then during the day its not so bad but its affecting my voice, and my feet and lower part of my legs feel numb. I just don't know what to make of all these different things that are going on with my body. One thing for sure is what ever is going on its attacking my body. Can't tell any more when and when not to go too the hospital.... Chanel

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 11/9/2011 4:47 PM (GMT -6)   
Did you get to talk with the doctor?
Joy

paperbagprincesses
Regular Member


Date Joined Apr 2011
Total Posts : 94
   Posted 11/10/2011 1:32 AM (GMT -6)   
My blood tests are negative. In the past 12 months I've had two elevated ESRs, now normal. My ANA was weakly positive at 1:80 on 3 occasions, now it's negative. My ENA panel (anti-dsDNA, SSA, SSB, anti-sm etc), CRP never elevated, normal compliment levels and normal complete blood count. My rheumatologist wrote "her blood tests are very negative"... like very pregnant. My liver function test is the only thing that's been elevated.

I was told I just had Fibromyalgia. However I had a bone scan done which showed arthritis. Now they're slightly more interested and saying "probable SLE" and "probably Sjogren's". I have arthritis, nose ulcers, rashes, fatigue, Raynaud's, dry eyes, dry mouth (and a few other things).

It does make it difficult when your blood tests show nothing. Most doctors will just dismiss you. What I've found is that doctors need some sort of proof because they can move on with treating you. I got proof through the bone scan, but I've heard of people with negative blood tests receiving a diagnosis through a skin rash punch biopsy.

If you know something's wrong, then don't give up and keep fighting for it. I've been told by almost every doctor I've seen (4 rheumatologists and about 5 different GPs) that it was either nothing or it was Fibromyalgia. One doctor told me to "stop coming to the doctor" because I "just have Fibromyalgia"... I'm glad I didn't listen.

Good luck.

cak
New Member


Date Joined Oct 2011
Total Posts : 14
   Posted 11/10/2011 7:15 AM (GMT -6)   
I can really relate to your story. I have been documenting all my symptoms... mylar/rosacia rash,sun sensitive(rash on face arms and chest) low grade fevers, cough, allergies & sinus. not to mention everything that goes along with my Fibromyalgia diag. The only thing that has shown up on my routine bloodwoork was a weak positive 1:80 ANA. Vit D. low. Now I have high blood pressure, which is being treated. I have been on 2 diff. meds. Cymbalta & Savella, now trying Lyrica. My Rhummy is new, he has not even run 1 blood test of his own! I hate all Dr.s right now and want to just give up! Mabey I will look into bone scan and see. Thanks for posting.

LAWCHICK
Regular Member


Date Joined Jul 2010
Total Posts : 468
   Posted 11/10/2011 10:37 AM (GMT -6)   
Hi, my doc tells me that blood work tends to go up and down. When I first got sick I tested pos ANA a few times also I had a low C4 Serum, when you have pos ANA with a low C4 serum it indicates an active autoimmune disease (of course the rhuemy I was seeing at the time managed to miss that). Also I struggle with low vit levels I mean as low as 6!. I think its possible to have normal blood work with lupus as right now my last test showed a neg ANA (mines goes from neg to pos). Right now however I am on medication so not sure what that means as far as labs are concerned.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 11/11/2011 2:22 PM (GMT -6)   
I have a positive ana 1:180 speckled and a positive sed rate but I am very sensitive to the sun. I've been on plaquenil for 8 months and am doing better but I still have to stay out of the sun. My doc thinks I have a mixed connective tissue disease or overlap. Another rheumy said inflammatory arthritis. I get sores in my mouth, have a very dry nose (not eyes) I also have morphea, an auto immune skin dz. in the scleroderma family. I have symptoms similar to yours. I've never had the butterfly rash. I hope you find a doctor to treat you and help you feel better,.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, Colon resection Nov. 2010, now in remission!
inflammator arthritis, type 2 d, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, synthroid, plaquenil, lactose intolerant, benicar
Blood test positive for Crohn's via prometheus ibd serology panel ASCA. Positive ANA speckled pattern 1:180, high sed r

chaneltina36
New Member


Date Joined Nov 2011
Total Posts : 5
   Posted 11/19/2011 9:54 AM (GMT -6)   
Hi Joyce, it's been a couple weeks sense I posted. I just wanted to give everyone a update on my test results and how I've been feeling. My ANA was negative again and myTSD was1.48 which is normal and my creatinine was .59 my potassium is 3.4 sometime it gets lower and my vitiam D is low my AST was 18. I still have all my other systems and for a couple weeks I have been having a hard time breathing and my chest hurts so my doctor did a chest X-ray and found slight hyperinflatiron, consistent with reactive airway disease. I'm 36 and never had a problem with my lungs yes I do smoke but maybe 15 cigarette a week. So I had to go and have a pulmonary function test done and the result was early emphysema how is this possible. I had this test done 10 years ago and I was fine. Still have muscle weakness and a rash in the middle of my chest and now along my jaw line and arms, and my eyes have been very dry plus my mouth. Also my hematocrit was 39.1 and my white blood cells 5.5. I wish I had more answers as to whats going on with me. Sometime I get a pain on my upper left side or my lower right side feels like someone punched me a few time in those spots. Sorry for the rambling... :)

Armypao06
New Member


Date Joined Dec 2011
Total Posts : 1
   Posted 12/19/2011 7:22 PM (GMT -6)   
Hi, I'm Nancy and new to this forum. I also have something (?) that manifests as an odd collection of symptioms: skin lesions that will not heal mainly on my face, neck upper back and scalp; Reynauds; chilblains on toes; red rash on my cheeks and nose that comes and goes; redish purple spots on my forearms aprox. the diameter of a pencil eraser that look like bruses but aren't--they gradually fade away like bruises; fatigue and increasing lack of endurance; pain and swelling in the joints of both hands--the knuckles and middle finger joints mainly; muscle aches upon arising that return in the evening before bedtime; and now even the bottoms of both feet hurt when I first get up in the morning! WHAT IS THIS??? I've been to rhumatologists (2) and dermatologists (several) but they aren't impressed; some are rude. I once had an ANA of 1:40, speckled, neg thereafter. Deficient in Vit B6 also. Doctors are so depressing and unhelpful that I've almost given up. But this isn't going away and it has aged me fast in the last four years.
I wish you all good health this Christmas season,
Nancy

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 12/19/2011 7:30 PM (GMT -6)   
Sometimes it takes several visits to a rhuemy and lots of bloodwork to get a diagnosis. Lupus is a great mimic. It's hard to diagnose.
Keep trying and don't give up. Try other rheumys maybe you will find one who sees like my doctor did...Even though my markers weren't high he decided I did have lupus afterall and tried me on plaquenil.
Joy

Kellysfirst
New Member


Date Joined Oct 2011
Total Posts : 10
   Posted 12/19/2011 10:21 PM (GMT -6)   
I second the don't give up!!
I'm not sure how many specialists I've seen now?? A dermatologist, a rheumatologist, a gastro intestinal specialist, an internalist, and finally went to the lupus clinic.
All my blood tests are neg for lupus, I do however have a 5cm mass of inflammed cells in my subcataneous fat, it's a type of panniculitis, that's not a typical lupus panni. I can't be the only one figuring out that there's no such thing as "typical lupus"
I have overlapping symptoms of SLE, my skin literally hurts, my joints are extremely painful, I'm having migraines for the first time in my life, I ended up in the hospital with something that looked like a cross between a stroke and a seizure, I am constantly dizzy, confused, slow in thought process, the exhaustion is unreal, I'm getting panni masses all over the rest of my body, and continue to test negative for everything. I've lost 70lbs in the last year. I'm thankful for the biopsy, but am so tired of we don't know what's wrong with you, why don't you try this Dr.
I am thankful that they have me on the hydroxy-chloriquine. I tried dapsone for a while and it didn't work, and have refused prednisone and all pain killers for my own personal reasons.
I've been fighting since May to find someone who might understand this I wish you luck in your battle, don't give up.
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