Starting to put symptoms together

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New Member

Date Joined Nov 2011
Total Posts : 1
   Posted 11/13/2011 6:34 PM (GMT -6)   
Hi! New to this board. I would like to list a time line of my child's strange symptoms to see what you all think. My son is 6 at present.

Age 6 months: myoclonic seizures intermittently for 3 months then outgrew them. Neurologist was not concerned since he outgrew it. None since.

Age 1: Petichiae rash appearing around 4 times between age 1 and 2 all over arms and buttocks lasting around a week each time. Pediatrician did a blood test for Leukemia and platelet disorder which were negative. Seemed to outgrow that and none since.

Age 2-4: Starting about age 2 he started getting rashes of red bumps on his back. No other symptoms were present at time of rashes. Dermatologist didn't know what it was. They itched, lasted around a week at a time and happened about every 4 months for 2 years then stopped about age 4 and none since. I chalked it up to an allergy that he outgrew.

Age 5 to present: getting a very pink "butterfly" shaped rash on his face with clear borders but not raised up or itchy. It lasts about 2-3 days at a time and it happens a few times a year.

I never put any of this together until one of my clients (who has Lupus) was looking at a photo of him and pointed out the rash on his face. I told her that he has sensitive skin but she said it looked like the rash she gets from her Lupus. At that moment all the weird unexplained things that have happened to him since he was a baby came to me. Could it all be connected? Could he have Lupus? Am I a crazy over reacting Mommy that spends too much time online, lol?

Opinions of those who have experience with this appreciated!

Gina in Austin

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 11/14/2011 2:35 PM (GMT -6)   
The best answer to your question is to have a doctor run an ANA test on him. If you need to then take him to see a rhuematologist for further testing. If you can, go straight to a rhuematologist is best thing.
He might also be sun sensitive. Try to use a broad spectrum sunscreen on him and SPF protective clothes. You can find them at or
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