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Forum Moderator

Date Joined May 2005
Total Posts : 7669
   Posted 11/14/2011 5:30 PM (GMT -6)   
I just wanted to let you know that our other moderator, Amy (aimsgirl16) , had her first dialysis today. She's been fighting with her kidneys most of the year and they just haven't been cooperating, so this is what it has come to. I believe she is also on the kidney transplant list, so if you have non-luppie friends who'd like to donate, sign them up! (I believe blood type B is required.)

There isn't a clear reason why her Lupus choose her kidneys, but it is a good reminder for us all to due our best to eat decently and drink lots of water! Not only can Lupus decide to attack our kidneys, but our medications are not kind to them and we need the water to keep liver & kidneys healthy!

Send healing energy, good thoughts and prayers to Amy!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 11/14/2011 7:11 PM (GMT -6)   
Sorry she has to endure dialysis. My brother's on the transplant list too for ten years now. He's type O. He had Bright's disease and Ecoli finished off the kidneys.
My thoughts are with her.

Veteran Member

Date Joined Jun 2008
Total Posts : 675
   Posted 11/14/2011 8:30 PM (GMT -6)   
I am sorry to hear that.  Sending Amy hopeful, positive thoughts with prayers for healing (and the perfect donor!).

Forum Moderator

Date Joined May 2005
Total Posts : 7669
   Posted 11/15/2011 1:55 PM (GMT -6)   
Amy had a great friend with her during her first treatment:

"Hanging out with Amy while she gets her first dialysis treatment... Except we're changing the name to LIVEalysis!"

Nothing heals quite as well as a positive attitude.
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 11/17/2011 2:48 PM (GMT -6)   
So glad to hear her first treatment went well... love her attitude. Keeping her in my thoughts. thank you for keeping us updated Lynnwood.
DX:SLE, Sjogrens, Raynauds, Migraines, Occipital Neuralgia, Dysautonomia, Morphea (Localized Scleroderma), Iron Deficiency Anemia, IBS, Diverticulosis

Meds:Prednisone, Cellcept, Plaquenil, Sulindac, Tramadol, Topamax, Xanax, Imitrex, Fiorinal, Prenatal Multi, B12, Vit E, Calcium, Fish Oil, Biotin, Ferrous Gluconate, Baby Aspirin, Salt Tablets

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 11/17/2011 10:16 PM (GMT -6)   
Please let Amy know we are thinking of her. Hope she is feeling better.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.

Forum Moderator

Date Joined Jun 2008
Total Posts : 1470
   Posted 11/18/2011 7:19 AM (GMT -6)   
Hey guys!! Thank you so much for your thoughts and prayers. I have felt them over this last week. It was terrifying at first but now I have gotten the hang of things and should get to bring everything home to do home dialsyis starting Monday. I am feeling SO much better than I have the last year and this has only been a week!

about the transplant list...there has been some confusion about it but at this time, I am not eligible because the lupus is so rampant in the kidneys. Once the lupus plays around all it wants and burns itself out, I can be put on the transplant list but until then, my doc "it will just be a waste of your time and money". So it could be 2 years or it could take 17 years or never burn itself out, we just have to wait and see :D
Lupus Moderater
Prednisone, carvedilol, heparin, Eliphos, toresmide, Vit D 50000 IU weekly
PRN: Ativan, zofran, hydrocodone, Ambien or Ambien CR, Flexeril, Ultram,

If God brings you to it, he will get you through it!!
peritoneal dialysis from lupus nephritis

Regular Member

Date Joined Jun 2008
Total Posts : 90
   Posted 12/7/2011 7:06 PM (GMT -6)   
I was just reading your thread & wanted to let you know how wonderful I think it is that you have such a great attitude! I also have lupus nephritis, although not nearly as severe as yours, and I know how easy it is to let this disease get you down. I have been very depressed lately & need to take some lessons from you!! I hope everthing works out for you! Lots of luck & love coming your way!!!!
Lots of Love!
Lupus, Rheumatoid Arthritis, High Blood Pressure, Anemia, Congestive Heart Failure, Kidney Failure

Regular Member

Date Joined Nov 2008
Total Posts : 106
   Posted 12/15/2011 12:36 AM (GMT -6)   
Hi Amy,
I haven't been on here for a while so sorry to here what you are going through, my thoughts are with you and I have to agree your attitude rocks. I finally got back to work full time after 2yrs off, it sure wipes me out, but reading about you and your attitude about it really makes me want to carry on.
DX:> NO Sjogren's 09, Fibro, NO Fibro, all over've got something we just don't no what?????
Life is what you make of it. Just something I try to remind myself every day.
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