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Amy's Kidneys

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Lupus
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Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8110
Posted 11/14/2011 3:30 PM (GMT -8)
I just wanted to let you know that our other moderator, Amy (aimsgirl16) , had her first dialysis today. She's been fighting with her kidneys most of the year and they just haven't been cooperating, so this is what it has come to. I believe she is also on the kidney transplant list, so if you have non-luppie friends who'd like to donate, sign them up! (I believe blood type B is required.)

There isn't a clear reason why her Lupus choose her kidneys, but it is a good reminder for us all to due our best to eat decently and drink lots of water! Not only can Lupus decide to attack our kidneys, but our medications are not kind to them and we need the water to keep liver & kidneys healthy!

Send healing energy, good thoughts and prayers to Amy!
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couchtater
Elite Member
Joined : Jul 2009
Posts : 14475
Posted 11/14/2011 5:11 PM (GMT -8)
Sorry she has to endure dialysis. My brother's on the transplant list too for ten years now. He's type O. He had Bright's disease and Ecoli finished off the kidneys.
My thoughts are with her.
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lucysgd
Veteran Member
Joined : Jun 2008
Posts : 675
Posted 11/14/2011 6:30 PM (GMT -8)
I am sorry to hear that.  Sending Amy hopeful, positive thoughts with prayers for healing (and the perfect donor!).
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Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8110
Posted 11/15/2011 11:55 AM (GMT -8)
Amy had a great friend with her during her first treatment:

"Hanging out with Amy while she gets her first dialysis treatment... Except we're changing the name to LIVEalysis!"

Nothing heals quite as well as a positive attitude.
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dbab
Veteran Member
Joined : Jan 2004
Posts : 4151
Posted 11/17/2011 12:48 PM (GMT -8)
So glad to hear her first treatment went well... love her attitude. Keeping her in my thoughts. thank you for keeping us updated Lynnwood.
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FW
Regular Member
Joined : May 2007
Posts : 482
Posted 11/17/2011 8:16 PM (GMT -8)
Please let Amy know we are thinking of her. Hope she is feeling better.
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aimsgirl16
Veteran Member
Joined : Jun 2008
Posts : 1470
Posted 11/18/2011 5:19 AM (GMT -8)
Hey guys!! Thank you so much for your thoughts and prayers. I have felt them over this last week. It was terrifying at first but now I have gotten the hang of things and should get to bring everything home to do home dialsyis starting Monday. I am feeling SO much better than I have the last year and this has only been a week!

about the transplant list...there has been some confusion about it but at this time, I am not eligible because the lupus is so rampant in the kidneys. Once the lupus plays around all it wants and burns itself out, I can be put on the transplant list but until then, my doc "it will just be a waste of your time and money". So it could be 2 years or it could take 17 years or never burn itself out, we just have to wait and see :D
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DQueen
Regular Member
Joined : Jun 2008
Posts : 90
Posted 12/7/2011 5:06 PM (GMT -8)
Amy,
I was just reading your thread & wanted to let you know how wonderful I think it is that you have such a great attitude! I also have lupus nephritis, although not nearly as severe as yours, and I know how easy it is to let this disease get you down. I have been very depressed lately & need to take some lessons from you!! I hope everthing works out for you! Lots of luck & love coming your way!!!!
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BigBry
Regular Member
Joined : Nov 2008
Posts : 106
Posted 12/14/2011 10:36 PM (GMT -8)
Hi Amy,
I haven't been on here for a while so sorry to here what you are going through, my thoughts are with you and I have to agree your attitude rocks. I finally got back to work full time after 2yrs off, it sure wipes me out, but reading about you and your attitude about it really makes me want to carry on.
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