Complicated migraines??

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New Member

Date Joined Oct 2011
Total Posts : 10
   Posted 11/18/2011 9:36 PM (GMT -6)   
I had an "episode" yesterday.
It happened at work, my manager said if she didn't know me and what I had been dealing with lately she said she would of thought I was having a stroke. I had muscle weakness, confusion and just not feeling "right" it felt like my whole body was in a slow mode??
 It landed me in an ambulance, and 9hrs later I left the ER with bloodwork being fine and the CT scan of my head was normal.
The episode was severe for about 30 min, there was some mild residual effects for a few hours, followed by an intense headache. Today I still don't feel "right" I'm left with twitching and seizing of the muscles under my one eye and a really bad headache that leaves my nauseous, exhausted and my head is still not right. My brain feels very slow today.
Just wondering if anyone else has experineced anything like this??
I've been diagnosed with lupus panniculitis with overlapping SLE symptoms and have been on Dapsone for about 3 wks now

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 11/20/2011 9:05 PM (GMT -6)   
I'd talk with my rheumy ASAP and see if this a new development from the lupus or a drug reaction.

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 11/21/2011 8:57 AM (GMT -6)   
I agree with Joy
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

Veteran Member

Date Joined Jan 2004
Total Posts : 4151
   Posted 11/24/2011 5:59 PM (GMT -6)   
Either your rheumy or a neurologist, whichever one would see you faster.
DX:SLE, Sjogrens, Raynauds, Migraines, Occipital Neuralgia, Dysautonomia, Morphea (Localized Scleroderma), Iron Deficiency Anemia, IBS, Diverticulosis

Meds:Prednisone, Cellcept, Plaquenil, Sulindac, Tramadol, Topamax, Xanax, Imitrex, Fiorinal, Prenatal Multi, B12, Vit E, Calcium, Fish Oil, Biotin, Ferrous Gluconate, Baby Aspirin, Salt Tablets

Regular Member

Date Joined Oct 2009
Total Posts : 111
   Posted 11/25/2011 2:03 PM (GMT -6)   
I have had these episodes for years. Saw a neurologist who, despite negative tests, decided to treat me for a seizure disorder. He put me on depakoate. I didn't have any episodes while on it. However, some time after that, my odor overruled him when my egd showed celiac, and took me off it as I began to get better with my diet.

Since then I have had a few episodes, but I also have many other neurological symptoms that mimic ms. I have been tested for that and did not have it (or at least its not showing up yet).

Then I just a few days ago, got the lupus dx, so now I'm thinking it has to do with lupus neuritis?

The thing about the autoimmune disorders is that they all sort of overlap. They don't fit into neat little categories. It's hard to say which symptom is caused by which.

Also, if you have one AI, ur at an increased risk for another. I'm especially lucky to have celiac, because its reported that a celiac will have an average of 7 AIs in their lifetime!

Most of my symptoms (quirks) I've just learned to live with. That one, however, is really scary. Some things they tried to test me for were ms, seizures, stroke, diabetes, addisons, and carcinoids. Just happened to sort of stumble up on the celiac when trying to figure out why I was losing so much weight.

Wow, I'm rambling, but I hope something I said will give u something to go on. Oh! Also have ur electrolytes checked! Can cause real serious probs (another thing they checked), but is an easy fix...
Jessica, diagnosis: Celiac Disease, Systemic Lupus Erythematosis
MVP, Clinical Depression, Anxiety
Celexa, Atenolol, Prilosec, Prednisone, Meloxicam

New Member

Date Joined Oct 2011
Total Posts : 10
   Posted 11/27/2011 10:29 PM (GMT -6)   
Thanks Jessica,
I have been diagnosed with celiacs and endometriosis for 10+ years now. I've also had a brief episode of about 18 months of menaris disease (vertigo) that hasn't been too bad and the fibromyalgia. With the 2 possible lupus disorders, sle and lupus panniculitis I should be almost done now. Lol
I'm learning lots as I go along and am grateful for all the info. I go back to the lupus clinic in 2 weeks. I'll talk to them about it. I really can't take another dr telling me m test results are fine. Somehow I find myself thankful for the masses in my body or I would start to wonder if this was all in my head too.
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