Posted 11/27/2011 7:27 PM (GMT -7)
I am new here and have been reading through posts in many areas. For years I have had health problems. My problems began with back and joint pain as a young teen. But at this same time, I was being poisoned with bleach by a caregiver. I honestly have felt that my issues were from chemical poisoning. And maybe they are-but gosh I am so sick of being sick and never knowing what is around the corner. Thing is, I have too much going on to BE sick, as I am sure all of you can agree with. I am a mom, a wife, a homemaker, and a horse trainer.
Here are some of my symptoms:
Arthritis(starting by the age of 21)
Gastric problems(for ten or more years)
Swelling in extremities
Cold in extremities(for the last 5 years)
Muscle spasms, nerve pain, cramping, often severe. (about 10 years)
Often dehabilitating fatigue.(10 years or more)
Rashes that come and go.(for about 10 years)
Weird responses to insect bites, too much sun, stress and wounds-rashes always pop up with all of them, and infections and bug bites don't heal well. (the last 5 years or so)
I get cold and flu worse than most.(since I was a kid)
Joint pain(since I was a kid)
Stomach pain(since I was a kid)
Bleeding under the skin in my lower legs (2006)
The list goes on
Here is what tests I have had that have at one point or another shown SOMETHING.
Skin biopsy: neutraphilic dermatosis.
Many times of very high sed rates, always with pos ANA
Positive for Epstein Barr
Positive for Rheumatoid Factor
Duodenal biopsy indicative of Celiac Disease
Occasional positive on Lupus anticoagulant
Right now, all I have is an ANA of 1:640-well the Doc said it was higher than? Don't know the pattern but in the past it was speckled. And now my heart is always flip-flopping. They did a quick EKG and said I was fine. Sometimes I can't catch my breath. I WAS on Wellbutrin for anxiety, they said it would help, but it got worse, so now I am on Effexor, no change in my weird heart flopping.
I have had some doctors blow me off. In fact, I was blown off and told to lose weight by one rheum-even though I had been on 120mg of pred for months for severe rashes and what looked like vasculitis. So that's what I tried to do. I went off the pred, tried to lose weight, avoided doctors for more than a year, and almost bled to death from my intestines by the culmination of symptoms I tried to hide. There have been times when the swelling and pain in my legs has been so bad that I simply couldn't walk. It feels like my veins have acid in them, and as I stand up, it it burns it's way down to my feet.
Also, my family history is this-Type 1 diabetes-even my six year old son now has it, but I do not. He also has celiac disease, but my blood tests for that are negative. Also, my father has gout. Can anyone tell me what the heck is wrong with me? I conceal things now out of fear-I just don't want to see the words "psychosomatic" and "abusive childhood" on my chart anymore.
But I also want to live to see my children grow up, and I am losing hope.
Please, if anyone can shed some light, I would be very grateful.