I had a positive ANA when I was pregnant with my first child 21 years ago. Nothing was really done about it though. My whole family is an autoimmune mess, my son type 1 diab with thyroid disease, my daughter graves disease and polycystic ovary syndrome. I have had some symptoms for as long as I can remember. NOW here goes, in June I had a surg that went way way way bad and I almost died. I was in the hosp for 22 days. After all of that mess I never recovered, I am going bald and I soooooo wish I was exagerating. I feel like the tinman and I need to have my oilcan with me at all times. I am so foggy and sometimes confused I annoy myself. I kept telling the docs what was happening but because it involved pain they did what we do to our patients.......I got blew off. I guess they thought I should have been better but I was really going down hill. Here now is where I get to how this may have happened to you. My brother is a very excellent cancer surgeon and he said due to the traumatic event it created a "flare" Also my vit d is only 16 my calcium is only 6.5 my liver enzymes are elevated and my ferratin is onlya 6. When the ferratin thing happened in Feb I had to get 12 bags of Iron. I cannot describe the feeling in my mouth. It hurts so bad like someone put indoor outdoor carpet in my mouth and I have bumps on my tongue a which something on the side of my cheek. My eyes are so dry my contacts rip while I have them in. I am so tired so very very very tired I am now taking Vyvanse because of it. I fall asleep at traffic lights I am isolated by my health. I got my ANA test ran but not until after my Dr rolled her eyes at me. It came back 1:320. None of the other tests came back positive for me either. It did buy me a referral to a rheumatologist. He said that with an ANA of that fam history that is unbelievable. Oh yeah my Aunt died from MS my rheum said he is calling it Lupus. He put me on Plaquenil and Prednisone but the pred was just for 3 weeks tapering down. It wasnt three days until the symptoms came back and getting stronger by the hour but the mouth thing got the worst of this flare. I work for my new PCP and he is amazing he said that I have autoimmune Hepa*** and Lupus and I will probably always have to do some kind of prednisone main reason being I had gastric bypass 9 years ago. I ma having a serious absorption problem all of my vitamin levels are very low my Dr also told me he thinks that I am "oozing" from somewhere. Anyway my brother the cancer surgeon said you never know surgery became so major and I hadn't been able to keep anything
in or down for about three weeks prior to surgery The person who puts you to sleep (sorry cant find the word in my head"I don't know what happened. I woke up with a 4xs its normal size, intestines knotted aboud a HUGE hernia and stones in my appendix. That stat bloodwork could have helped me not go thru this After 4 days there my legs were getting HUGE GINORMOUS and I started having difficulty breathing. I By friday I could barely walk due to the weight of my legs and saddle bag area. I called the surgeon that did the surg and ...are you ready....he said tell her to go to her PCP. Yup I typed it outloud :) I was in congestive heart failure and I normally weigh about 140 but due to the edema I weighed 190 and was I couldnt eat so I had to have a pic line for TPN...well I mean I could eat but very little I already have small stomach due to gastric bypass so I only absorb about 60% of that which made getting enough food in was hard. After a few bites I get sickly full. Well all those symptoms are still here and they must be working on their PhD You have extremely significant symptoms of it
Now, my ana was 1:320 now after the pred and plaquenil it is 1:160 So I was told by my rheumy that I have Lupus despite the secondary testing that they do coming back negative. Boy wasn't I just windy tonight?
Lupus Hashimotos Thyroiditis (Thyroid removed 1984) Gastric Bypass 2002
Synthroid 250mcg, Topomax 100mg, Lamectal 300mg, Vit D 50,000 mon/thurs, B12 1ml inj once a week, Plaquenil 200mg 1daily then 2 daily alternating, Prednisone (for flares) Valium PRN, Lasix 40mg 2x daily, Potassium,Percocet 10/325PRN, Imitrex inj or nasal PRN, Phenergan, Vyvanse 40mg, Multi Vit