sleeping problems

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Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 11/30/2011 6:12 PM (GMT -6)   
I'm prone to having trouble getting to sleep. I take melatonin to help me get sleepy. Sometimes it helps sometimes not. mad This is not a problem on weekends when I don't have to go to work.
For the past week or so I've been waking up for no reason around 2 o'clock. I then have trouble going back to a deep sleep. I drift in and out of a very light sleep for hours. smhair Since I have to get up at 5:45am every morning during the week this is frustrating!
Are sleep issues a Lupus thing? I'm so tired from lack of sleep last night. I just want a solid night sleep. smurf zzzzzzzzz

Regular Member

Date Joined May 2007
Total Posts : 482
   Posted 11/30/2011 6:36 PM (GMT -6)   
This was a huge issue for me. Even with conventional sleep aids, I would fall asleep, but wake up several hours later in a lot of pain. Doc finally prescribed Ambien CR (now available as a generic but I can't remember the name). The results were amazing. I have been taking it nightly for about 4 years now and the difference is unbelievable.

I hope you are able to get this resolved, I know it can be awful.
Take care, Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Aciphex, Nasacort, Prozac, Ambien CR, CellCept, Zantac.
Daily Supplements: Calcium, B-100 Complex, Daily Vitamins.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Vicodin, Prednisone.

Regular Member

Date Joined Dec 2009
Total Posts : 130
   Posted 12/1/2011 12:18 PM (GMT -6)   
hi.I have the same problem.I never really knew how bad it was till I went to the sleep clinic.They said I was getting about 3 hours real sleep a nite,and I was waking up cause my heart would stop.So now Im on a CPAP machine.Its not great and it really takes awhile to get used to it,but I do get more rested for sure.You might ask your doc about it.If you arent really cant feel better.I do take melatonin once in awhile,but only try to use it 3 times a week,as not to become dependent on pills.

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 12/1/2011 6:54 PM (GMT -6)   
I'm on a Cpap already. My pressure is 14 right now.
I've been on the Cpap for three years now. It is hard to adjust to at first but I feel like it's a life saver.

I guess I need to ask the doctor about a sleep aid. :(

Regular Member

Date Joined Sep 2011
Total Posts : 51
   Posted 12/2/2011 3:36 PM (GMT -6)   
Hey couchtater,
I'd recommend a white noise machine, but your CPAP machine is probably just as good. smilewinkgrin
What's your caffeine intake like?  If you drink coffee, tea or soda, do you just drink it in the AM or do you drink it all day?
Any new aches or pains?  That could wake you up, too.
I hope you get it figured out soon!  It's rotten to get up that early and still be tired.
dx: SLE 07/2011, OCD 2006, osteoarthritis 2002
rx: plaquenil 200mg/day, methotrexate 10 mg/week, NSAID for pain, zoloft 200 mg, folic acid

Forum Moderator

Date Joined May 2005
Total Posts : 7669
   Posted 12/2/2011 3:53 PM (GMT -6)   
Talk to your doctor about what sleep aids may apply. Getting good restorative sleep is imperative if we are to have any hope of beating lupus fatigue!!!! I can't even put into words how wonderful a help it's been to me!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 12/2/2011 5:34 PM (GMT -6)   
I have an air cleaner running constantly for my allergies. It makes a great white noise machine too.
I'm not a coffee or tea drinker. I rarely have a soda. When I do it's always caffeine free.
The aches are mild right now and tolerable.
Some nights I guess I just need a conk on the head!
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