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Date Joined Oct 2009
Total Posts : 111
   Posted 12/2/2011 4:32 PM (GMT -6)   
I consider myself to still be young (32), and once upon a time very active. After losing a total of 70 lbs from celiac (which was no fun), I am now on the low normal side of weight to height. Question? Does exercise help, and if so what kind? Will not be running; don't want joint replacement in my future. Thought about taking a self defense type course, but seems like it could be stressful to my body...

What do u guys do?
Jessica, diagnosis: Celiac Disease, Systemic Lupus Erythematosis
MVP, Clinical Depression, Anxiety
Celexa, Atenolol, Prilosec, Prednisone, Meloxicam

Veteran Member

Date Joined May 2005
Total Posts : 7723
   Posted 12/2/2011 4:51 PM (GMT -6)   
Moderate weight-bearing exercise (walking, running, hiking) is good for the bones. Moderate weight-lifting is good to keep muscle tone and strength. Make sure to take enough calcium (esp, if taking prednisone) and protein. If all else fails and you can swim, that's one of the best overall exercises there is!

I was a marathon runner & moderate weight lifter before lupus (ages 18-44), a lazy bag of bones with no energy, prednisone weight gain, and total loss of muscle tone/strength while lupus was bad (44-52), and now my lupus is quiet and it's taken over a year to loose 10 lbs, work back to mild weight lifting, and be able to walk 30 minutes.

Especially if you've been previously fit, it's very easy to do more than you should and then be useless for a week. I finally found that if I did about 1/3rd of what I felt I could do, and increased by no more than 10% per week, I was able to make slow steady progress. And if I felt pains or fatigue coming on let yourself rest for a day or two -- it's better than pushing thru then going backward for 2-3 weeks. Just do *something* every day, with lots of water & rest.

I hope that my lupus remains quiet and that I'll be able to run again some day -- but lupus likes to attack one hip and that just may not be possible. I can run slowly for about 5 minutes but that's it -- and the hip will hurt 5-6 days. Not worth it!
Lynnwood, Lupus & Sjogren's Moderator
"Life is far too important to be taken seriously" - Oscar Wilde

Veteran Member

Date Joined Feb 2009
Total Posts : 1916
   Posted 12/3/2011 9:47 AM (GMT -6)   
In the summer, I love to swim. I have to wear a heavy sunscreen and go late in the afternoon when the sun goes down.

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 12/3/2011 4:19 PM (GMT -6)   
My rheumy wants me to do water exercise before attempting "land exercise", They have written me out a RX to the YMCA for water exercises. You should talk this over with your doctor and get his/her opinion on it. You don't want to do more damage than good when just starting out exercising again.
Lupus Moderater

dialysis from lupus nephritis

Regular Member

Date Joined Dec 2009
Total Posts : 130
   Posted 12/5/2011 2:08 PM (GMT -6)   
I feel the same aimsgirl.I used to be a trainer,but its all I can do to get all the housework done now.I consider it my exercise...especially the stairs!If I even do crunches like I used to..I hurt the next few days.Stretching is good too-I feel it keeps me alittle more I can do my dreaded housework! :0)
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