I am so glad someone responded I was getting a little worried. Well my protein levels in my urine were at 9.9 when the normal range is 1 so they started me on lisinipril 5 mg dailyto lower the level. At the two check up the levels had dropped to 2.5 which is good but not in the normal range. My Nephrologist also started me on CellCept which I just started this past Sunday, he is treating in increased increments. This week I am taking 500 mg twice a day, next week 1000 mg twice a day and the following week 1500 twice a day. His goal is to use the medication to put the Lupus into remission. He said it would take about
a year to get everything stablilized. So, after meeting with him my Rheumatologist has put me on Plaquenil 400 mg a day and since I am having severe body aches he added Prednisone 40 mg per day. The medications are slowly working, I think. I still have body aches especially in legs, arms and hands. The joint pain is unbearable at times. I try to take tylenol and they prescribed Hydrocodone when needed but I have limited myself to only taking it when I cannot stand the pain anymore. I am also on Levothyroxine for my thyroid and 1200 mg of calcium. I have been dealing with the levels being high since June but did not have this flare up until the beginning of November when my levels reached a ultimate high. My creatinine level was normal and my albumin level low. Not sure about
the BUN but I have an appt. on Monday and I will ask about
that one. I just turned 33 and I have a 19 month old son who keeps me busy but I feel frustrated when my body hurts so bad and I can't be the best mom I can be due to pain. I am so glad to find the forum and talk to someone who has been or is going through this. I am concerned about
the side effects of the meds, I am swollen and bloated all the time now from the predinisone, hopefully they will start tapering it down when the Plaquenil kicks in about
a month or two. If they can get the pain under control the rest would be ok to deal with. Thank you so much for listening, I am sorry you are at the dialysis point now. What treatments did they start for you? How long were they treating you before the dialysis? What meds and side effects did you have and how did you deal with the side effects? Any information helps, I read up on it online but the medical jargon is impossible to comprehend, or at least it doesn't have any meaning to me right now. Thanks and hope to hear from you.