I know this was posted a while ago, but I have a lot of questions, and am hoping some are still checking replies. I was just diagnosed with Class V Lupus Membranous Nephritis as well. I had a high level of blood and protein in my UA (not sure of the exact number) and my platelets have obviously been insanely low. Other than that, all other blood counts, blood work (creatinine, BUN,etc.) have been good (they've all been tested and retested about 3 times). I'm in the same boat as Crazy 8, I've been doing some looking online but the medical jargon either has me extremely confused, or really scared.
I was put on Prednisone to get my platelet level up high enough for my biopsy, but because they were so low had to treat it very aggressively (100 mg/day). So the 1 1/2 week I was on the high dosage is now going to take me almost 2 months to taper off from. I am having some serious side effects with the Prednisone (which have pretty much sent me into depression). I don't have my follow up for another week with the Nephrologist, but am just wondering what the alternative treatments are to drugs like Prednisone. My kidneys are functioning fine, and I am really hoping there is an alternative treatment that will either stop the progression or slow the progression before it gets to the point of affecting my kidney function.
Sorry there is probably a lot of rambling. My mind is all over the place, and I'm really scared to be on a maintenance drug like Prednisone for the rest of my life.
Any input would greatly help!