Small Lungs????

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couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 12/20/2011 7:21 PM (GMT -6)   
I saw my pulmologist today because I've been coughing a lot and my ribs were hurting.
She did an xray and said my lungs are smaller than normal. She said also it's the norm for Lupus patients to have smaller lungs. shocked
 
Have any of you been told that? confused
 
She put me on a stronger dose of Advair and gave me a perscription for a zpack in case I get worse. eyes
Joy

aimsgirl16
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Date Joined Jun 2008
Total Posts : 1470
   Posted 12/20/2011 9:49 PM (GMT -6)   
Nope, not been told that. Very interesting!!!
Amy
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dialysis from lupus nephritis

Lynnwood
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Date Joined May 2005
Total Posts : 7720
   Posted 12/20/2011 10:55 PM (GMT -6)   
I've never heard or read that before. Not entirely sure I believe it, either!
Lynnwood, Lupus & Sjogren's Moderator
DIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 12/21/2011 12:47 PM (GMT -6)   
I mentioned my conversation with my pulmologist to my rheumy today. He said there is a condition that can happen with some Lupus patients...Shrinking Lung Syndrome.
It does exist!
Here's a link : www.ncbi.nlm.nih.gov/pubmed/14736565

He said it's rare and wasn't sure I have it, but my pulmologist is supposed to monitor it and keep him informed of any changes.
Joy

Bsime
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Date Joined Apr 2006
Total Posts : 1342
   Posted 12/22/2011 10:49 AM (GMT -6)   
Learn something new every day.  I think this syndrome is very rare and this is the first time I have heard of it in 6 years of researching lupus.
 
 
I was diagnosed with pulmonary hypertension but it turned out the problem was severely weakened diaphragm muscles from polymyositis.  As they strengthened my problems went away.  Dodged a bullet since it was feared that scleroderma had gotten into my lungs.
 
Bill

couchtater
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Date Joined Jul 2009
Total Posts : 14475
   Posted 12/22/2011 1:33 PM (GMT -6)   
If I read the research pages right it usually happens if you're asthmatic and have SLE, too. But even then it's very rare.
I have had moderate asthma for 20+ years. :(
I'm hoping that my lung size is the norm for me. She's supposed to compare my xrays yesterday to the ones I had with her over five years ago. Meanwhile I can't stop coughing.
Joy
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