I'm really at a bit of a loss right now... I'm more than done with dr.'s
I had my appointment at the lupus clinic last week, I think this is my 4/5th batch of specialists. They can say I don't have systemic lupus all my tests come back negative, I could still have a type of discoid lupus, and the lupus panniculitis I was diagnosed with a few months ago apparently is not typical.
Now, I'm not a lupus expert by any means, but isn't the one typical thing with lupus is that it isn't typical??
I'm thankful I actually have a biopsy of the panniculitis with a differential being lupus. Otherwise I'd be up crap creek with all my negative test results.
I know we all deal with the frustartions of the Dr.'s, this has been since May, still having really no answers. I'm back on hydroxy-chloriquine as the dapsone wasn't working.
The lupus clinic actually asked me to come back in 6months because they're very interested in my case and would like to see if anyone else has figured this out. Awesome, thanks.
I try to just keep laughing it off, but really, there's going to be a breaking point soon.
Rant over, thanks