Kidney Involvement and CNS Symptoms

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Regular Member

Date Joined Oct 2008
Total Posts : 261
   Posted 12/28/2011 11:44 PM (GMT -6)   
I have been curious too about kidney involvement as I've had labs show protein and bacteria in my urine before and this last one I had protein, wbc's, casts and bacteria. My complement was also notably low. I'm like the opposite of everything that is supposed to be. With my kidney infections I've had(3 so far)I never had any burning with urination just back pain up into my kidneys and sharp pains in the flank area along with tiny spots of blood. I do not get the "normal" symptoms with sicknesses so it's hard for me to even tell what is infection and what isn't in the first place. Anyhow, I've always had issues with my eyes being puffy upon waking and having the indentation from socks in my feet or leg pain after walking all day. I'm also getting bruising now on my legs when I flare. I've showed my dr but they don't see concerned although it happens when I'm flaring and then goes away like everything else. I was just put back on 7.5mgs of pred due to have adrenal insufficiency and low cortisol at 1mg and then those labs came up after being on the increased pred at 2 1/2 weeks. She was supposed to switch me down to hydrocortisone and try and taper me from there but since I had the flag in the labs dec 12th I had to get a retest set I'm waiting to hear back about. ...Sorry to rant and ramble but I just wanted to share my concerns and I'm curious about everyone's experience as well! Thanks so much and hope you had wonderful holidays! -Lupie Brittanee

P.S. I've also had some weird symptoms with my head lately...Like earlier tonight in church it felt as if the right side of my head was heavier than the right and was pulling or pushing me down or something and I was really spacey and stuff...on christmas eve I had come in from outside and started feeling dizzy and spacey and nauseous so I had to lay down. When I did all the aching, burning etc started with the lupus crap I usually get. The burning has happened a lot more since then and is present tonight as well after the weird head thing at church. Any ideas??...figured I'd mention this and get anyone's take on possible CNS involvement??
*Lupie Britt*- Epilepsy Dx: 2003 & UCTD w/SLE features Dx: 2009 SLE/Lupus Dx: May 12th 2011--Current Meds:Plaquenil-200mg 2x/day, Prednisone-1mgs taper 1mg every 4 wks, Keppra-750mg 2x/day, Daily Vitamin- 1 pill/day, Folic Acid- 1mg 1x/day, Protonix 40mg 1x/day,Vit. D 800IU's 1x/day, Lyrica 50mgs 1x/day, Flonase 50mcg 2 sprays each 1x/day.


Elite Member

Date Joined Jul 2009
Total Posts : 14475
   Posted 12/29/2011 4:52 PM (GMT -6)   
I don't know much about kidney involvement, but I do get those weird spacey feelings.
I've had 3 UTIs in three months.
I just got a call from my rheumy to come back for a retest on my urinlysis. He said there was blood in it. :(

Veteran Member

Date Joined Jun 2008
Total Posts : 1470
   Posted 12/29/2011 11:46 PM (GMT -6)   
Typically in lupus nephritis you have no pain. Actaully, I have not heard of a case of it causing pain in anyone. Maybe one of the medications you are on are causing the UTI or kidney infections. It sounds like yours are a infection that hasnt been able to be cleared up. Are you currently on antibiotics? Spilling protein will cause you to have puffy eyes and puffy ankles also known as edema. Please let your doctor know you have edema and ask about getting on another antibitoic if you are not on any right now.
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dialysis from lupus nephritis
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