Hi everyone - I'm usually active on the Chronic Pain forum, but if anyone can give me some input here I'd be very grateful.
about 2 1/2-3 months ago, I started spiking fevers every evening (anywhere from - I'm not sure if it's an evening thing as such, or just that my body is on a 24 hour cycle with it. Also debilitating fatigue, which is getting worse. I'm constantly exhausted anyway - I have severe pain due to full-body CRPS that stops me sleeping and I have some 'fog' with the CRPS - not unlike 'Fibro fog' - but this is like nothing I've experienced before. It hits me like a bus and I can't think, can't function. I ended up lying on the floor last night, because I feel too weak to crawl into bed to rest.
The pain is a difficult one to pin down - I've got pain body-wide as it is, but I feel it's worse during these episodes. I also get more pain in areas not so badly affected by the CRPS.
Since I last spoke to my GP about it (when he was a bit stumped) my face flares red as well - looking at photographs of the malar rash, I suspect that that is what it is, so have taken photos to show my him in case it's not there when I go to see him.
My other big worry is that I know it's steroid responsive. I had to have my wisdom teeth out in early December and was put on prednisolone to help keep my CRPS under control. Fever went away and fatigue improved, then returned within a few days of stopping the steroid.
Aiming to go back to see my GP next week, and I'm seeing my Pain Management doc later next week so I've lots of questions to put to them.
Thanks in advance.
Moderator - Chronic Pain Forum
Full body CRPS with spasms, dystonia & contractures, gastroparesis, orthostatic hypotension,bradycardia/tachycardia, bursitis, CTS, osteoporosis, multiple compression fx, disc bulges.
Oxycodone ER/IR, Topamax, Mobic, Somac, Cipramil, Midodrine, Vit D & C, SCS, baclofen/bupivacaine pump