Excellent point made Hassled and I think the last sentence is aimed at the general public as the post is sort of like an open letter and I understand where you are coming from. I developed Lupus 8 months ago after going on Humira for Crohn's disease and have problems walking and with exhaustion and have just been given disability living allowance and am still able to work but have had to reduce my hours as the combo of the Lupus,Crohn's, arthritis, damaged neck discs, short bowel syndrome, malabsorbtion all fight me on a day to day basis and I need to eat 4000 calories a day as have had so much bowel removed that absorb only a quarter of what I eat so all my colleagues are on post Xmas diets and I sit there eating all high calorie stuff and they say I am so lucky. They don't mean it nastily as they all know my medical problems and know what I have been through and I don't take it to heart and say I would quite happily swop with them but funnily enough they all decline and say they will stick to their celery stick and keep their health. lol
I am getting my disabled parking permit in the post this week and will only use it when I need to but when I do anyone looks at me like i am faking and will more than happily explain why and then ask them to think before they make assumptions. Best wishes.
Crohn's, antiphospholipid syndrome, Crohn's arthritis, very low blood pressure, low kidney function, ezcema, asthma, ileostomy, numerous surgeries for abscessses & strictures. Humira - very bad permanent side effects incl joint pain, hair loss, fatigue & nreve damage. Azathioprine, immodium, simethicone, fludrocortisone, oxycodone, gabapentin, tramadol, amitriptyline, Folic acid, vit d & calcium.