Im so frustrated with my situation. I have MCTD (Lupus, Ra, Fibro & Raynauds). DX 4 YRS AGO AT 37 YO (they believe my left preg in 04 triggered it. It took 3 yrs off misery to figure out a dd & even w this dx, no other clinicians have even heard of MCTD so they make u feel like an idiot!
Anyhow..I am a <snip> but have been unable to work x 4 yrs!
My pain & fatigue- BAD. I have flares all the time but I just get prednisone MEGA-DOSED!
I ALSO take Arava, Methotrexate, nifedipine, estropipate, Cymbalta, fentanyl patch for pain, cyclobenzaprine, sulfasalazine, gabapentin & clonazepam 4sleep.
I want to be put on one of the BIG GUNS (EMBREL OR HUMIRA) BUT..RHEUM DR SAYS I CANNOT BC I HAVE MCTD & NOT JUST SLE! I just want somethg that'll get me closer to baseline or normal! I honestly cannot remember last day I felt good! YEARS AGO!
BARELY HAVE ENERGY TO CARE FOR MY 2CHILDREN(7 & 10 YRS)! BUT..AT LEAST MY HUSB GETS IT NOW!
He just came @last fall ...we nearly separated! IT WAS HARDEST TIME OF MY LIFE!
ANY ADVICE APPRECIATED!
THANK U! ANGELINA
Post Edited By Moderator (Lynnwood) : 1/13/2012 8:29:44 AM (GMT-7)