Your rheumy doesn't seem to be of much use. Can you get a second opinion from a rheumy who is active in your local chapter of www.lupus.org
? Definitely something worth pursuing if the neurologist isn't helpful.
Lupus is usually diagnosed by a *combination* of symptoms and bloodwork, not by either alone. If you aren't getting your symptoms addressed, regardless of diagnosis or not, then keep on till you find a Dr than can help you.
Sometimes we have to try medications even when we aren't happy with possible side effects. Very often it's only 1 in 10000 who even have a side effect, but it's legalese they have to talk about
. Some of these meds can perform miracles! Cellcept worked for me, others have had good results with Imuran or MTX.
Lynnwood, Lupus & Sjogren's ModeratorDIAGNOSING-LUPUS & LUPUS-RESOURCES
"Life is far too important to be taken seriously" - Oscar Wilde