Judged by Drs for my medlist!

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AngelinaATF
Regular Member


Date Joined Jan 2012
Total Posts : 135
   Posted 1/16/2012 1:53 PM (GMT -6)   
I have found that anytime I have to go to GP (or primary-care Providers) that have never seen me before (I rarely can get in to see my regular Dr as she is very busy. Ironically I can get in to see my Rheum Dr at a moments notice!) Anyhow the on-call docs rarely have heard of a Mixed Connective Tissue Disease (MCTD) & always make remarks @ my med-list. This infuriates me! I'm more than understanding & always try to see their perspective however my Rheum prescribes my pain meds & do not require that I go to the pain clinic bc they trust me (I always take the lowest dose possible & am taking half the dose I took 3 yrs ago) & they realize how hard it is for me to get @ in sub-zero temps here in ND (the pain clinic is far away & requires monthly appointments). Why are other physicians & Providers so judgemental & how do you get past their accusing demeanor? nono

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 1/16/2012 6:39 PM (GMT -6)   
Before my diagnosis people accused me of being a hypocondriac. Now they realize my aches and pains are not imagined.
It's hard for someone who doesn't have this disease to realize what we're going through.
Try to let this roll off of you and don't stress over it. More stress is not good for you. So relax and just see it as them not knowing you or your illness.
Joy

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/18/2012 10:21 PM (GMT -6)   
hugggsss Joy
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

AngelinaATF
Regular Member


Date Joined Jan 2012
Total Posts : 135
   Posted 1/20/2012 1:37 AM (GMT -6)   
Thank you Joy. You're wise & kind! I try yo remember back to when I was illness free & what I thought of ppl...but I tried hard not to judge (maybe I had a premonition!) At any rate,I do just say.I have an illness. Even 1 of my nrighbors (a hateful twitchy woman) told the others that I am "lazy" & nonsocial. Its tough but u have to build s thick skin I guess!
I would give anythg to be a normal mom!
Angelina
age 41
dx: MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
meds: Arava, prednisone, NIFEDIPINE, estropipate, cyclobenzaprine, gabapentin, hydrocod (4BTP), fentanyl patch, methotrexate - MTX (on hold), minocycline, clonaxepam (sleep), vitamin D, B stress complex, PRILOSEC, Transderm-Scop (on hold)

aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 1/20/2012 10:34 AM (GMT -6)   
So, start acting tuff. When you go to said doctor. Tell them you have MCTD and hear in your med list and you don't want to hear anything about the medlist. And go on to ask them how they would like to live in pain like you are. Don't give them the opertunity to judge you. You do have to build thick skin but if it bothers you so much, than thick skin is what you need.

When I would see my general doc, I would name the pills I took every day. Not the ones I might take for pain every few days or so.

How long have you had MCTD?
Amy
Lupus Moderater


dialysis from lupus nephritis

AngelinaATF
Regular Member


Date Joined Jan 2012
Total Posts : 135
   Posted 1/20/2012 4:25 PM (GMT -6)   
@4 yrs diagnosed but 7 yrs symptoms. Yes..I do need to be tougher but I'm always afraid I'll come across as defensive. In the whole grand scheme of things - who really cares what they think? Maybe someday they too will have severe pain! I just heard a statistic that 10% of American population suffers from it!
Angelina
age 41
dx: MCTD(LUPUS), RAYNAUDS, FIBROMYALGIA, L4L5 disc herniation, fracture in L3 fro EPIDURAL in childbirth
meds: Arava, prednisone, Nifedipine, estropipate, cyclobenzaprine, Cymbalta, sulfasalazine, gabapentin, hydrocod (4BTP), fentanyl patch, methotrexate - MTX (on hold), minocycline, clonaxepam (sleep), vitamin D, B stress complex, PRILOSEC, Transderm-Scop (on hold)

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 1/21/2012 2:29 AM (GMT -6)   
Angelina, you have a lot of medications, like I do. Anyhow, one of my fav places to go is here and drugs.com @ drugs they have an "interaction" checker and I cross check all my medications. I've caught things that slipped past doctor's and pharmacies. My recent one was my heart meds and thyroid meds can cause respitory failure so I emailed my doctor and said you realize I've told you I'm on metropol right? He emailed me back asking questions of doses, etc and said we'd start routine labs. You know what they say.... health care workers make the worse patients! And I live it, I knowledge myself and come up with the questions they don't wanna deal with. My lastest fight is in my update :p
"The Walking Medical Mystery"

Too many Allergies / Too many RXs & DXs

A Rare Gem for Doctors and Guinee Pig
~Medical Caregiver and Doctors Worse Nightmare~

aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 1/21/2012 10:03 AM (GMT -6)   
Yes, sometimes we need to start medications that have interactions with our diseases. Prime example. I am in ESRD and on dialysis. I was recently put on levaquin. When you read the side effects it says something like if you have what is listed you stand a higher chance of developing tendon ruptures
1. if your 60 or older (no)
2. if you are on steriods such as prednisone (yes)
3. Kidney failure. (yup)
And my doctor the prescribed it was my nephrologist who deels with kidney failure every day and also started me on prednisone. So Bam. I got 2/3. Of course I called my doctor and they said the the benefit of the medication outways the risk. I have also had the big D for 2 days but it is clearing up my tunnel infection each day. I would say it is worth the few issues it might be causing for the relief I am getting.
Amy
Lupus Moderater


dialysis from lupus nephritis
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